I am not a trained expert so bare with me - My MSAA Community

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I am not a trained expert so bare with me

RoyceNewton profile image
6 Replies

I am not any form an expert on Relapsing Remitting ms(RRms), I have never been, I never will be. What I say and the way I say it are from my 20+ years of living with this condition and She Who Must be Obeyed's 23 years in the game. Firstly it is a game. A game that none of us knew or wanted ever to play. A game that we do not know the everchanging rules to, but a game that we are playing. I say game as I say life is a game. I will not take it to seriously because if I were serious, I would have made the rules much nicer and had my joint-dog talk back to me, and maybe some unpleasant people never talk to me. Besides, I know what happens in this game and how it ends.

RRms happened to me, it happened to "YOU" as well. Nobody can cure it; nobody can say why exactly we have it. We "ALL" just do, because, just because. If we want to be technical, it is a Homo Sapien condition and we are Homo Sapiens, so because.

Now that we have the why sorted out, what to do next. That is easy a good long cry get it out of your system. I tell an untruth here. I went outside not long ago, looked at the sky and burst into tears. I am not sure exactly why or over what I just did. RRms messes with your emotions just when "YOU" think "YOU" have finally got your act together "YOU" cry. It is very tricksy like that.

Now that "YOU" have got your first good cry out, maybe "YOU" might consider crying again. I am pretty sure I cried for several months at first. Off and on of course. I was not depressed just very lonely and confused. I thought I was the only one and I had done something wrong. I was not and I had not. I read some very strange philosophy books and slowly changed my outlook and expectations for this life with a chronic, incurable disease. I read some very odd things but broadened my horizons as to what may be my future. I highly recommend it. It has allowed me to appreciate things that I would not normally have and forgive things that I am inclined to not to immediately. Changing my attitude allowed me to walk out of a restaurant in my underwear, it has allowed me to wear protective underwear as a habit, to have various women inject me with a needle every other day for years.

"YOU" do see the pattern here don't "YOU" In your weakness, it is possible to be strong and resilient. At any time in our long ms lives, we are given opportunities to fail, resist them. Be strong and prove to yourself that "YOU CAN" Knowing that "YOU"CAN" is a good thing and good things are good. A lot of goods there but "YOU" do see my point. Come at this illness knowing that "YOU" will lose but without a doubt "YOU" can play it so well it will be talked about for years. Relax everybody losses, nobody comes out of life, alive.

This is only RRRms, this illness can be done and today with better Disease Modifying Therapies (DMT) and a strong belief in yourself it is possible to great through this with only a few bruises.

Royce

One step at a time, one day at a time. This is very "DOABLE"

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RoyceNewton profile image
RoyceNewton
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6 Replies
carolek572 profile image
carolek572CommunityAmbassador

Ahem, Royce, 'bare' should probably be 'bear', because I 'barely' know you. I couldn't resist teasing you. After all, life is more 'bearable' with a laugh, smile, or a giggle every once in a while. Just don't poke the 'bear'! Okay, okay, I'll stop! :-D

RoyceNewton profile image
RoyceNewton in reply tocarolek572

I agree but bear just did not look right. Beare is an animal bare is a noun. That was my thinking anyway. If I am wrong I stand corrected. Any grammar teachers around? So let us see if we can get a correct answer

jimeka profile image
jimeka in reply toRoyceNewton

Bear with me means to have patience with me, so carolek572 is correct. 👍

Peruzzot profile image
Peruzzot in reply tojimeka

Bare is another word for naked.😎

carolek572 profile image
carolek572CommunityAmbassador in reply toPeruzzot

:-D

RoyceNewton profile image
RoyceNewton in reply tojimeka

okay I will give you this one and beg for mercy

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