Aubagio side effects : I just started... - My MSAA Community

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Aubagio side effects

Katypadiddle profile image
14 Replies

I just started Aubagio at the end of February. Near the end of March my finger tips went numb. The end of April I saw my PCP and had high blood pressure at the visit. Now I’m taking my blood pressure 3 times a day and I’m to report back to him. Just a week or so ago I noticed I was losing more hair than I had before. I received an email from Common Threads and they always include the drug information for Aubagio so I took a look since I was losing hair and remembered that as a side effect. Numbness in the fingers and high blood pressure are also side effects. Today I have a bad headache. Also a side effect. I will report my blood pressure readings and the fact that is a side effect to my PCP on Monday. I will also give MS One to One a call. For those of you that have taken Aubagio, did you experience side effects and how long did you have them? I can’t function with a constant headache.

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Katypadiddle profile image
Katypadiddle
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14 Replies
kandykone1 profile image
kandykone1

I am so sorry. I chose NOT to take this medicine bcz the side effects seemed more than I could handle. I went on Tysabri... 3 months in no issues.

Best of luck.

stalno profile image
stalno

I've had no problems with Aubagio. It's possible that I've lost some hair but since my hair was going before I started it's hard to tell the difference.

Michael2803 profile image
Michael2803

I am sorry that you are having problems with Aubagio, I have been on this meds for two years for me I have no side effects at all. I guess each meds have side effects for different people. My thoughts and prayers are with you.

LeannEHl profile image
LeannEHl

My experience with Aubagio was really liquid diarhea, making leaving the house a huge risk, No way to predict when all hell would break loose!

themswire profile image
themswire

I was on Aubagio for a couple of years and it did a good job of slowing my MS progression. I had some hair thinning but that was no big deal for a guy who, at the time, was in his late 60s. It was the only side effect that I noticed.

I'd suggest that you discuss the symptoms that you report with your neurologist, particularly since you're concerned that they may be related to Aubagio. Frankly, I wouldn't bother calling One-to-One. The RNs aren't permitted to provide medical advice. They'll just tell you what I just suggested: call your neuro.

Kenu profile image
Kenu

No, I have been on Aubagio for over two years with no side effects at all 👍. Ken 🐾🐾

mrsmike9 profile image
mrsmike9

For me, Aubagio was the 1st one I took that did NOT cause bad effects for me. Copaxone and Techfidera about killed me but Aubagio doesn't bother me at all. It just shows that we're all different. Many people here take the ones I couldn't with no problem! Tell your neuro and try something else. For me, the 3rd one was the charm!

TwinA profile image
TwinA

So sorry about headaches. I've been on Aubagio for 7 years...yikes! First and only pharm. I've taken for MS. I had hair thinning but hardly noticeable and that stopped after a few months. Interesting about spiked blood pressure. I never thought of that, nor had PCP mentioned that even when my BP reads slightly high. Anyway you're probably best to talk to your DR since as you see from all replies we all vary a little. Take care

Katypadiddle profile image
Katypadiddle

So today I have nausea 🤢. Oh joy. I called the neurologist this morning and this afternoon I heard from him. I’m to take 1/2 Aubagio or 7 mg once a day and if I still have the side effects in a week I’m to call him and let him know and they’ll figure out something else. Lordy. What a ride!

tory1960 profile image
tory1960

Hi there- I had those same side effects along with skin flushing. Stayed on Aubagio for 3 mths, symptoms continued to get worse.

I found Tecfidera to be much better. Next med to be Mayzent.

Best of luck to you, my friend!

Neworleanslady profile image
Neworleanslady

Ive been on aubagio going on 3 months. I get some mild headaches sometimes that I didn’t get before. I was worried about losing my hair but im not even losing the regular amount of hair that came out naturally before i started aubagio! So no stray hairs in my hairbrush or when washing my hair so it’s pretty nice for me! Although ive seen several people say they started noticing their hair loss after 3 months on it. So if hair loss is coming for me, it’s coming soon!

Before this i took Tecfidera, then copaxone, then glatirimir (generic copaxone), now this.

Katypadiddle profile image
Katypadiddle in reply toNeworleanslady

Wow. I took Tecfidera 1st, then Copaxone and now Aubagio. I really liked Tecfidera and wish I could still take it. No side effects from it at all 😊!!

Neworleanslady profile image
Neworleanslady in reply toKatypadiddle

Omg same course of meds! I loved how i felt ms-wise with Tecfidera, but it lowered my wbc count substantially and i got nervous. Plus right when i was getting off it, it became known that someone on it got pml and it freaked me out. My internal belief is that those “stronger” meds would work best for me, but id rather stick with these safer ones like Copaxone and aubagio bc im scared of pml .

mm1527mm profile image
mm1527mm

I have never taken aubagio but sorry to hear you are dealing with these side effects

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