Yes, it is sharing time again and we all know that only means one thing, advice. Not that I have ever walked out of a restaurant bathroom in my PROTECTIVE UNDERWEAR ONLY or that I have fallen in the street from taking the curb the wrong way on my 3 wheel scooter. NO, I am going to say something to “YOU” and “YOU” alone. If this is not “YOU” feel free to stop reading, I will not be upset. Okay, as it is only us now let us talk.
Here are the facts and nothing but the facts, not really I just remember that movie line. This is an incurable chronic illness. “YOU” like me are very likely to go downhill, the rate at which “YOU” do that does depend a lot upon your behaviour. She who must be obeyed was housebound when we met, today she drives, walks around (with a cane for emotional support) and does most things that a normal fifty year old woman would do. I on the other hand do not drive nor run. In all honesty I always thought running was overrated, but that is just me.
This illness takes time to learn how to handle. I do not believe that it is possible to get all your questions answered, find the perfect Disease Modifying Therapy (DMT) and get cured in one day. Firstly there is NO CURE. Put your money back in your wallet. DMT is very highly recommended, but “YOU” have to give it time to work and do not expect miracles, whatever they are. No, my friend this illness is lifelong, read a long term event. There will be downs, little ups, but mostly downs. Not to terrible, this is the nature of our condition. I might politely suggest that “YOU” start out on the strongest DMT that “YOU” can get and tolerate. Why start out at the bottom and expect great results. That makes little sense to me.
I understand at first accepting this condition is rather difficult, but accept it “YOU” must. Accept that people “YOU” thought would be there wont be, jobs may try to get rid of “YOU” and that your life dreams may be turned upside down. For some everything may work out like a dream, and that is great, but not really standard as I have found in my twenty years.
Take a deep breath, pull yourself together and wipe away your tears, there is serious work to be done. There is more than enough time for tears and recriminations later. This is a lifelong condition “YOU” do realize and your life will be long. IN all seriousness, this is a DOABLE disease. It requires “YOU” to DO it, and cope with what it asks of “YOU” Adapt to your new circumstances and keep adapting. Then go forth and live your best possible ms life. And accept the constant changing of everything that "YOU" thought that "YOU" could forget.
Royce,
Go to the nNewly Diagnosed (newbies( section of this website for more steps, and ASK QUESTIONS, lots of questions..
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Its that time again! My 6 month mark on Ocrevus.
OK, y'all it's time for a joke!! We need to laugh more often!! Hope y'all enjoy it!!
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