Neuro appointment

[StacyHayward]

I saw my neuro on the 11th of February. Had to double our driving time due to a snow storm. He’s pretty happy with where things are. We only adjusted the time of day I take my second dose of ampyra.

Interestingly, I asked him his go to med if I just can’t stand taking Rebif anymore. (I don’t have side effects and it’s working great, but hate shots). He said unless Rebif stops working he’s hesitant to change because it could change how my MS is doing.

Then the same afternoon I read an article from an MS page (can’t remember which one) that said new protocol recommends the same thing!!! So I guess he’s pretty smart.

Sounded like from the article too many people aren’t giving a med a long enough try to see if it truly works. They just med hop to the newest, then never get stable. So it was good advice.

[jimeka]

That’s good news for you Stacey, thanks for sharing. Blessings Jimeka 🦋

[Wizardsmom]

Hi Stacy, I found that to be so interesting. I'm glad you are doing well on Rebif.

[kdali]

Glad to hear everything is well!

[Bdavis79]

I had the same problem and when there was pill form I switched to Gelynia first, (didn’t work as well) now I take Tecfidera which has worked fine and haven’t had any exaserbations in 2 years