Just wanted to share a little about the discussion I had with my neuro today at my appointment. I told him what my niece and her husband said to me about vaccines and Ocrevus. (Both of them are in medicine.) He confirmed what they told me...that timing of vaccinations after starting on Ocrevus will be critical to the vaccines having any protective affect. Too close to the time of an infusion and there won't be the necessary B cells for the vaccine to build up the proper immunity. This is such a catch 22!!
I told him I was disappointed that this wasn't made clear to me in time to get the new shingles vaccine but at least I got my pneumonia booster done. I can't delay the first Ocrevus infusion because of the weeks since my last Tysabri infusion.
I asked if there is an optimum time to get vaccinated and he said no sooner than 12 weeks following an Ocrevus infusion. Then he said they don't really know the optimum time at this point because it hasn't been studied. That's just great. It seems irresponsible not to have the answers for this because it adds risk for the people on the Ocrevus protocol despite the marketing hype that it has a "better safety profile".
And one more thing he told me is that it was good that I had the minor surgery procedure last week, because he would have veto'ed it as too much risk for infection this close to my infusion. I was so surprised by this that I couldn't think of what to say so didn't ask the questions I should have.
We also discussed the disagreement amongst MS neuros about prescribing DMT's for their older patients. He is thinking about starting his own database to capture data on his older patients like me.