Neuro appointment today: Saw my neuro... - My MSAA Community

My MSAA Community

8,967 members โ€ข 20,687 posts

Neuro appointment today

StacyHayward profile image
StacyHayward
โ€ข21 Replies

Saw my neuro today. He said Iโ€™m doing fantastic and called me boring ๐Ÿ˜‚

I really am blessed to be doing so well. Ampyra has been my miracle drug and Rebif continues to work well.

I am going to try a sleeping pill. Bad sleep and increased fatigue were my only complaints today.

On a side note...my tomatoes are taller than I am!

Written by
StacyHayward profile image
StacyHayward
To view profiles and participate in discussions please or .
Read more about...
21 Replies
โ€ข
rjoneslaw profile image
rjoneslaw

this is great news!!!

I'm soooooooooooo happy 4 u!!!!!!!!!!!!

falalalala profile image
falalalala

Good news!

I got ONE tomato so far.Yours look great!

StacyHayward profile image
StacyHayward in reply to falalalala

Itโ€™s been a weird year for gardens in Utah. Everything I have is struggling except tomatos, and itโ€™s my best year ever.

falalalala profile image
falalalala in reply to StacyHayward

That is the thing that I most want to do well. :)

carolek572 profile image
carolek572CommunityAmbassador

You look so happy in your photo, StacyHayward You will soon be over your head with tomatoes! Good thing for you?

Keep Smiling,

Carole :-D

StacyHayward profile image
StacyHayward in reply to carolek572

Thanks! I am pretty happy. Life is good despite difficulties thrown my way.

jimeka profile image
jimeka

A bumper crop, well done. Have you done any jig saws recently? Blessings Jimeka ๐Ÿฆ‹

StacyHayward profile image
StacyHayward in reply to jimeka

Not recently. Too much yard work to do and finishing other projects.

nicoly3467 profile image
nicoly3467

Congrats! Thatโ€™s awesome news. Love your tall tomatoes ๐Ÿ…

Great news! I love it when doctors say I'm boring! I too have had only 1 grape tomato.

Frances_B profile image
Frances_B

It's good that you're doing well - and "boring" is way better than "interesting" and it sure beats "challenging" by a million miles! However note that fatigue can be a side-effect of Rebif - it was one of my worst side-effects from it (the other really bad one was serious depression). Both my fatigue and depression improved dramatically within ten days of stopping Rebif. Starting sleeping tablets can lead you down a very slippery slope where you become very dependent on them, and you should really only take them for maybe 2 to 4 days at the most when you have absolutely no other choice.

What are you feeding those tomatoes - super-charged horse poo or ???

erash profile image
erash

Boring ๐Ÿ‘๐Ÿ‘๐Ÿ‘

janetb1968 profile image
janetb1968

Thatโ€™s great news honey xxxxx ๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป

pamgarner profile image
pamgarner

wish I was there,nothing better than home grown tomatoes

mrsmike9 profile image
mrsmike9

I have never seen tomato plants that tall! Wow!

I have trouble sleeping so I take one benedryl at night. I read a chapter or two and then I'm done and am only woken by my bladder or alarm!

So happy you're "boring" to the neuro!

bxrmom profile image
bxrmom

That's great news StacyHayward Never seen tomatoes that tall before! Hope you get a lot of tomatoes (or maders as we call them for my dog lol) Hope you are able to get some sleep soon. Keep us updated on how things go.

Jessie

lbenmaor profile image
lbenmaor

That's great news!! Thank you for sharing it with us.

Leslie

hairbrain4 profile image
hairbrain4

Great news about your neuro visit.๐Ÿ‘ It's great to be boring sometimes! I'm jealous of those tomato plants! I didn't even try this year with all the rain we had.

eharoot profile image
eharoot

just wondering what kinds of differences did you notice with Ampyra

StacyHayward profile image
StacyHayward in reply to eharoot

Huge walking difference. I was having significant trouble getting signals to my legs after sitting or standing for very long. When Iโ€™d try to walk, I had to hold on to something. Sometimes my left leg could barely respond. And I couldnโ€™t immediately stand after sitting. I had to wait for my legs to get functioning or Iโ€™d collapse.

Everyone watching me walk thought I was in agony because it looked so awful. But there wasnโ€™t pain. Legs just didnโ€™t work.

After ampyra I am nearly back to a normal walking gait. Iโ€™d say about 95%. I occasionally have a bad day or moment but itโ€™s usually tied to late nights or fatigue.

Walking better has directly help lessen fatigue too, since my legs donโ€™t feel like 50 pounds anymore and Iโ€™m not working so hard to walk and not fall.

I honestly believe Iโ€™d be using a walker or wheelchair full time if I wasnโ€™t taking ampyra. My legs were getting that bad.

I know itโ€™s not this dramatic of a help for everyone. My neuro says for some itโ€™s a home run and others a strike out. For me, gratefully, itโ€™s been a grand slam!

eharoot profile image
eharoot in reply to StacyHayward

really sounds great. thank you so much for your answer. its inspiring to hear

You may also like...

Neuro checkup appointment today

I have my regular 6 month neuro checkup today. I hope he has my latest MRI results because I'm not...

Neuro appointment today

Well...today is the neuro appointment where I'm going to give in and start the process to switch...

Neuro appointment today - Ocrevus discussion

a little about the discussion I had with my neuro today at my appointment. I told him what my...

First MS Neuro Appointment!

supposed to order for the fatigue. Hm. Will have to check back with neuro! I just wanted to also...

Neuro visit today and Tecfidera ๐Ÿ˜€

with my Neuro today so I'm not sure if that's why he did some tests in the office on me. Neuro also...