Hi guys this is my first post here and just firstly wanted to say hi and well done, you are all ledges!
I am at the secondary progressive MS stage - had it for 26 years and been SP for 6. It’s a horse of a different colour than RR, but managable ! Have kids but live on my own, when they aren’t here.
V tough, but u don’t learn how strong you are by havin it easy eh?
I am not on Facebook or any of that, (it’s a full time job managing SPMS...)
My question is this.. I have gained great wisdom, support and understanding from the wheelchair kamikaze. His posts resonate with me as a fellow secondary progressive. I have never spoken to him, but note that he has not posted since Christmas.
I just wonder if anyone knew why he had gone so quiet?
I know he had a bad run with his waterworks, as have I... (hmm the drug company vampires would be some help if they at least found new antibiotics to fight these resistant bugs...)
Yes, I am worried he won’t be posting anymore words of wisdom and Grace..(or fine tunes...)
Yes, I am worried that his fine voice has been silenced by the ravages of secondary progression....
If anyone has any intel, I would be grateful. His name is Marc Sterck I think (or wheelchair Kamikaze)
Take care of yourselves!
Thanks