2019

[Johngm]

Lets pray for new discoveries that actually help us with MS and not just the pharm companies. Has anyone learned if doctors are paid for recommending a drug?

[rjoneslaw]

My dr office has a rule that they can’t pass out materials that drug companys send to get patients to choose their drugs.

They will give u a list of drugs that best suit u and u then pick which u want 2 take. Nothing is forced upon u

But if you ask they will let you go in the closet to see what’s in there and u can have what u find. The company sends some really nice things. One company put their materials in this really nice bag and I use the bag to put my iPad in and people always comment on how it’s different and and stylish

[Johngm in reply to rjoneslaw]

Thanks, I know drug companies cannot give out pens and other things with their name on it at meetings. It would also be unethical and or illegal.

[ssdw1958]

That is a very good question. When I was taking Avonex I got a packet of information for the medicine and who was in the DVR but my neologist. But after maybe about a year he took me off of it. It did nothing for me.

[CalfeeChick CommunityAmbassador]

Yes, we definitely need more MS medication progress and more MS awareness. As far as doctors getting a reward for recommending one med over another, I think the Medical boards has made that pretty unethical. Years ago, General Practitioners would give out samples of various meds from drug reps, but I haven't seen them do that for many years.

[goatgal]

Johngm A few years ago, I heard of a website that lists doctors who attend (as guests) restaurant/resort focused presentations sponsored by drug companies under the guise of continuing education. I have forgotten the URL but it's probably out there somewhere.

[IFwczs]

Doctors get 5% of the medication price. Think Lemtrada at 300k a year.

[CalfeeChick CommunityAmbassador in reply to IFwczs]

WOW!!😲😲😲

[Johngm]

Just curious as to where you got this information. Sure sounds unethical!

[IFwczs in reply to Johngm]

Can't disclose my sources for fear of Big Pharma. And, for all I know, that might be you. 😲

[pamgarner]

I really think they are going to recommend anything that may give us hope,Not to be a negative nellie, but my dr said it works best on rrps before it advances, and there is less than 10% that actually have miracles.I am on it also, have secondary and 3rd infusion this month if after change of year my insurance says ok.just don't give up, it is so easy to get discouraged, maybe we were chosen for this yucky disease because we are stronger than most!

[kdali]

Yes for the new discoveries (and research), and no on paid to write for certain drugs.

I wish my neuro got a kick back, she deserves it.