Octevus anyone?...

[Lyssi458]

I am recently diagnosed as of September 2018. I am a mother of 3 boys 4years and younger.

My neurologist is suggesting Octevus... (probably spelling it wrong, I think of the word Oculus 🤷🏻‍♀️)

I’m just curious to anyone else’s experience with this medication and if they can share their experience with the first transfusion?

[carolek572 CommunityAmbassador]

Welcome to this forum, Lyssi458 . You are looking for information on Ocrevus, and you have come to the right place. Many in this forum have posted about their experiences with this medication. You can find them by putting Ocrevus in the search box at the top right hand corner.

I am currently on Ocrevus, and have been since February of this year. So far, so good and I look forward to seeing more positive things as I am on it longer.

[RoseySawyer]

Hi and Welcome! 😊❤🌷

[MS_Indestructible]

Welcome, and the word you are looking for is Ocrevus, and that is an Infusion. Up in the top of the page is a "Search" link. Click on that link and do a search for Ocrevus and you will see all the posts for that DMD [disease modifying drug]. There are many of our members who have shared their experience.

[jimeka]

Hi, 3 boys under 4, you sure will have your hands full. Many of our members are on Ocrevus and have shared the ups and downs of it. No one on here is a doctor, all we can do is listen and suggest but at the end of the day, you and your doctor / neurologist needs to talk about it. You have age on your side, at least they have found yours at an early age. When I got dx I was in my 50’s and I was told I had probably had since my 30’s. Now I am in my 60’s, I live in the U.K. and Ocrevus hasn’t yet been approved for PPMS. Read on here what it says about Ocrevus, but if I could give you one word of advice, it would be don’t Google it. Blessings Jimeka 🎄

[Lyssi458]

Thanks everyone. I guess I’m just nervous. This whole MS thing is scary, losing my vision and being on that medication.

[Jazzihorsecat]

💐😍💗A very warm welcome to our MSer Family here Amartinez, Now, your family too. 😄 I know it's scarry, I was just DX'd in May of this yr. & many of us have had it Many, many yrs. Not knowing what was wrong w/ us. But we're here to encourage, support & even cry + laugh with you. Cuz we all get it!👍😍 Again welcome, I didn't want to be a human Pin cushion💊💉 nor guinea pig for the Harma-pseutical companies. I goin all Natural, cleaning a leaky-gut, cuz our guts & our brains are linked, if you have Kindle, I recommend a really good book by "Ann Boroch, Healing M.S. Naturally", it tells all about leaky-gut syndrome & our auto-immune diseases. Change of diet also really helps out, cutting out all dairy(cow), all gluten (wheat, soy,) & goin veggies, fruits, & nut/ goatmilks are good. Much hugs, Blessings & Prayers for Ya!💐🙏🌷--Jazmine🌹Rose💜