How Have You Adjusted Your Schedule? - My MSAA Community

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How Have You Adjusted Your Schedule?


It seems, sometimes, that MS writes our schedules for us. I realized recently that I had gradually changed my so-called schedule to accommodate my "typical" MS day since my last relapse. Even though I tend to have more energy in the mornings, I often need to start the day more slowly to reduce stress. Instead of showering first thing like I used to do and then doing chores, I usually read my emails and sip my coffee first.

How have you changed your schedule because of MS?

34 Replies

I am working on accepting the unpredictable which is usually an all day affair.

Not just all day, but all the live long day.(also oh da doo dah day)

I can't stop...;)

greaterexpCommunityAmbassador in reply to falalalala

Do you feel as though you’ve been working on a railroad?

Yes, on a track that goes on for myelin!

greaterexpCommunityAmbassador in reply to falalalala

Dinah, blow your horn.

Patsy does it better

greaterexpCommunityAmbassador in reply to falalalala

The best!

Doubled51 in reply to greaterexp

All the live long day


Yes, and no. When I get up, I usually have high hopes, then realize that it's dinner time! I no longer see specific days as they are all the same day to me... :(

greaterexpCommunityAmbassador in reply to carolek572

I can sure relate to that.

jimeka in reply to carolek572

You are not on your own 🤗 🍫

Doubled51 in reply to carolek572

I know exactly what you mean.☹️☹️.


I'm more of a morning person so I try to get everything done then

in the evening I just do the things I couldn't do

my noon naps are shorter, they were 4hr now they're btwn 2-3hr now if that depending on my need for sleep

I also feel like three of the seven dwarfs, Grumpy, Sleepy, Dopey. I try to do things in the morning, but get so wiped out I am worthless the rest of the day. How is a person supposed to get anything accomplished? If I start sneezing like a dwarf or playing “doc” I know I am in deep doo doo! Kelly

The first thing I do in the morning is make my bed. Then I head downstairs for breakfast and plan my day. If I have energy after I get myself ready for the day, I head back downstairs and rest a bit then clean the kitchen if it needs it. I have found if I pace myself, I can get a lot done. 🌺

greaterexpCommunityAmbassador in reply to BigMar7

Wise planning!

Begin slow to reduce stress in the morning” it is that I never have thought, but is a good idea.

I begin the schedule , firstly I like to writte something, after breakfast, after exercise out . The last thing only because the MS.

What is a schedule? I haven't had one of those for ages - had to give up on them as being totally unattainable :)

greaterexpCommunityAmbassador in reply to Frances_B

I should have said “routine,” rather than schedule. I think “schedule” implies something quite different from “routine.” Sitting on the couch all day wouldn’t be on my schedule, but it surely could become my routine.

We are constantly having to adjust, aren’t we? For me, at least, no two days are the same.

All the live long day.😋😋.




I like your idea to begin slow to no have stress. Have you more Ideas for a day without stress?

greaterexpCommunityAmbassador in reply to Violonchelo

I’d imagine that it’s different for everyone, but try to identify what causes you stress. For me, I have begun feeling stressed with preparing to have dinner guests. We don’t entertain guests much now, so that helps. But now I try to spread the work out over a few days when possible. I try to enlist my husband to help. I don’t plan such elaborate meals, but cook fewer dishes and keep things simple. When people offer to bring something, I’ve learned to let them. I’ve stopped offering to help everyone with everything that comes to mind and only agree to volunteer for things I feel pretty sure I can handle without feeling pressured.

I have to re-evaluate these things often, but these are few things which help me.

Yes, different for everyone. For me the noyse in my own house: the doors, the phones, the TV, the radio ... the big volume ....Sometimes I have more noyse at home than out. No music, no silence, noyse is stress. Maybe auriculares 🎧 in the future...

I like the silence to writte. I live with this year of Pandemia without silence that I like always.

Silence . Or maybe walk near the sea give me calm the 10 years before. Now at home 🏡 The noyse of a house is stress. Maybe listen the sea and the silence of the Nature was perfect.

My day starts with medication

greaterexpCommunityAmbassador in reply to Tazmanian

That’s probably a good way to start the day!

I start my day by letting Jack out, then a cup of coffee, then my daily devotions, a game of solitaire, and a crossword puzzle. The coffee is to wake my brain up, the daily devotions recharge my battery and solitaire and a crossword puzzle kickstart my mind so I don't fall back to sleep. I've always done coffee and devotions before getting on with my day but this past year I have needed the games to help get the critical thinking thing going.

greaterexpCommunityAmbassador in reply to hairbrain4

I walk Dickens at around 4:30, so I feel I’ve earned my coffee when I get back. I like doing the crossword puzzle mid morning when I need another break. It’s amazing how helpful sitting down for a break helps relax my muscles at times.

Learning to stop and rest was one of the hardest things for me to change. I was always used to going until I was done with the task. Now I rest when I need to or the task won't get done or if it does then I am done in for a couple of days.

greaterexpCommunityAmbassador in reply to hairbrain4

I think you're very wise to pay attention to what your body needs. It's a difficult change to make for most of us, especially when we were "Energizer Bunnies" before MS.

Sorry I'm late. I start my day with prayer. I am still working on acceptance of the change in my life. From running and cleaning all day, to if I can get 2 loads of laundry done and dinner cooked I'm done! I try to plan by what I have to do for the week. If I know I have an appointment, I try to do one more thing and I'm exhausted the rest of the day. The next day I do nothing but rest. I am learning how to adjust to this new system of mine. I feel like my family and friends are doing a better job at it then I am.

greaterexpCommunityAmbassador in reply to Christina49

That was really hard for me, too - the changing of expectations. I used to be go, go, go, all day until I dropped. Now it seems as if the "drop" comes awfully early.


I try to get most of what i need to done jn morning or early morning. I try to avoid things that make me not feel well like being outside too much in heat.

greaterexpCommunityAmbassador in reply to mm1527mm

You're a smart cookie!

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