ms, you are sneaky but I am better than ... - My MSAA Community

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ms, you are sneaky but I am better than you.

RoyceNewton profile image
4 Replies

There is always an option too any ms problem. I understand that "YOU" may not see it at first, but let me assure "YOU", there is. Mostly it involves changing your mindset. "YOU" can not do what "YOU" used to but, that does not mean that "YOU" can not think of a way to work around it and still achieve your goal. Noy every problem is solved by drugs.

This illness may be new to "YOU" or "YOU" may have had it for many years. Mistakes will happen, "YOU" will cry and be sad, People will come and sadly some will go. It all boils down to "YOU have Relapsing Remitting ms (RRms) not them "YOU". There is really no reason to be sad, it just is. Why it happened I do not know. What happens next I do not know that either. There is lots that we do not know. Not knowing can be difficult and frustrating, but if we were not sick would we know everything that was going to happen to us? No, I really doubt it At least now I have some vague idea of the possibilities that may await me, and now I can strengthen myself to cope with them, a little easier if they do happen.

Twenty years ago, I would never have imagined that I would be able to thrive as I have. Regardless if "YOU" are newly diagnosed(newbie) or "YOU" have been travelling your path awhile, living your mslife. There will and always be some uncertainty. Bend with this uncertainty, let it crash over "YOU" like waves on a sandy beach.

This is a very doable condition today in 2018. Give yourself every tool that "YOU" possibly can to allow yourself to stand tall, or sit as the case may be. Do not sell yourself short. RRms is a reason, not an excuse. I found a way to cope, to live, to thrive with this condition. I am not special and I am not the only one. They cope, "YOU" my friend can and will as well, it just takes a little out of the box thinking.

Royce

ms is very doable, not beatable, but very doable. YOU CAN, YOU DO YOUR ms, today and always

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RoyceNewton profile image
RoyceNewton
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4 Replies
Shellilee profile image
Shellilee

You're alwwys so positive Royce. I get feeling down once in a while and your comments always pick me up. I am in my 20th year of having MS and now I am in the secondary progress stage. I am in a wheelchair and haven't been able to walk in about four years. My hands are starting to go and I can't write anymore. Thank goodness for the speaker on my phone which I use all the time since there's too many typos when I try to type it. I try to stay positive but I have my days for sure. Life is not what it used to be and I feel I have adjusted as my disability progresses. I've lost everything physically I guess the next step will be bedridden. My neuro just ordered me a hospital bed as he thinks it will be easier. I can't even lift my legs on my own anymore because I don't feel them. It sucks sometimes but I try to stay positive the best I can.

RoyceNewton profile image
RoyceNewton in reply toShellilee

20 years you must have been DX'd about the time they got me. I am sorry that you are where you are and hope the best for you always

Shellilee profile image
Shellilee

Thanks Royce. I know you and others on here understand. Tomorrow is a new day and I am always hopeful.

RoyceNewton profile image
RoyceNewton in reply toShellilee

that is the way to be, hope is much better than despair

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