Your job is to not be lonely: This is... - My MSAA Community

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Your job is to not be lonely

RoyceNewton profile image
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This is something the longer "YOU" travel along your ms path "YOU" will realize you really are your best friend. Besides us of course. Back in the day "YOU" may have been carefree, footloose and fancy-free "YOU" can be again but "YOU" need to be smart about it.

Prepare yourself for your carefree moments and days. This does not have to be an impossible illness, just a little tricky. Go to the store, but wear your protective underwear, know where the toilets are, and where "YOU" can sit down. Drink coffee and stare at the strange people, they are out there. Just because "YOU" experience this illness does not mean your life has to be turned off.

"YOU" have Relapsing Remitting ms(RRms), today that means that "YOU" have lots of options. In the old days, I had injections every other day, but still managed to travel from Australia to the United States several times, all it took was some planning. Think about what I wanted to do and make it happen. No courage or any such thing involved, just a decision to do something and learning from the many mistakes I made, of which there were several.

Today my car has a plastic bag in it. Just so when I soil myself I can put it on the seat and not make to much of a mess. I have cooling wraps so if I get too hot I can cool myself down when I need to. I know where bathrooms are so I can quickly wash my face and cool down. I am very careful when I go into new places. I keep my eyes open to what is around me in case I have an issue.

Being new on this path, even older people, can "LEARN" to be smarter about doing things. Adjust the things "YOU" and your spouse\significant other do outside your home. Keep your relationship alive with some planned spontaneity. No companion, flirt with the baristas at the coffee shop, ask people questions at the gym, pay a stranger a compliment. Who knows what it might lead to. I paid a young woman a compliment once and we have been friends now for twenty years. Just do not close yourself away, make it your task to open yourself to others. Treat it like a job. We all are disabled, take the stress off everything that "YOU" can, do your ms do not let it do "YOU".

Working towards that goal, why don't "YOU" get a chair and go sit under a tree a few hours a day. No need to get a tan, just some fresh air. Make a little sand pit for your small child. Just do something that allows "YOU" to escape ms for a little while. Relationships might be a little stronger if there was some sort of reprieve from ms every now and again. Just think about it a little. RRms is in your life, "YOU" do not have to make it rule your life, unless "YOU" want it to be.

Royce

ms is in our life, choose if you want it to be your life

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