Relapsing Remitting ms (RRms) is not impossible

[RoyceNewton]

RRms is not impossible, it is not some terrible sentence, put that way far out of your mind. It is a change, a rather unexpected and large one, but no more than that. It will require of “YOU”, a number of different things throughout your life. Life does anyway, so accept the changes and move through them. Never stop, keep moving and keep living the best way that “YOU” can. This affliction that we all have often changes. Do not ever expect that because “YOU” did it once “YOU” will be able to do it again and again. Maybe “YOU can maybe “YOU” can not, maybe “YOU” can do it another day. That is the nature of RRms. As I have often said, get yourself educated, learn about RRms and yours in particular. I am sure Amazon has a large scale picture of the brain and of the Central Nervous System (CNS), actually they do they are getting flattened so I can put them on the wall when I find space. I think that it will be an after Australia holiday task. Either way on the wall they will go. Knowing what leads to what and where nerves start in the body is great. There is no need to be a neurologist but being able to picture what “YOU” are being told gives “YOU” such power and confidence in your very long RRms journey. Exactly like knowing something about cars so mechanics do not totally bamboozle and rip “YOU” off. That is what “YOU” must do and what I am suggesting. Better to know, than to be in the dark for years.

Knowing these things certainly does minimize your fears. Knowing why things happen and what they may or may not lead to makes your RRms management so much easier to cope with. Back in the day all the ms literature showed ladies in wheelchairs. That made me rather nervous, did I have to put on weight, get a sex change and sit in a wheelchair smiling. My penis still worked back then so it was rather a scary thought. Alas it did not have to be like that. No large floppy breasts for me forever to play with. What was advertised did not have to be me, or “YOU” We have a choice, decide to manage manipulate and nudge your RRms into a position that”YOU” can live with or ignore it and fight it and put yourself into a position of constant fear and pain. It is your choice.

As “YOU” can tell I kept my penis and stayed walking. I learned what I could about RRms and got on with life, no matter what RRms hits me with. There is never a need to surrender to our condition. There is a huge need to do a very quick and through evaluation of your life. Get a goal to aim for , life is much easier that way. Do not follow everybody else’s path. “YOU” are on your own path. Accept that it WILL change over your long lifetime. Embrace these change do not fight too hard against them. This is a chronic disease. If it gets worse that is okay it is supposed to do that. If it stays the same or slowly progresses that is good. That is why we take Disease Modifying Therapy (DMT) to keep us upright as long as we can, never to cure us. Sorry to say it, but there is no cure, RRms is our lot in this life.

Royce

I can say though it is not a bad lot to live and live it we all do

[carolek572 CommunityAmbassador]

I like that you have injected a little bit of humor into an otherwise very serious topic. And well said again, Royce

[RoyceNewton in reply to carolek572]

you have to laugh or all you do is cry

[carolek572 CommunityAmbassador in reply to RoyceNewton]

So very true, Royce. I would rather laugh

[Kenu]

Very good post Royce 👍. I remember the same thing when I started out and then ran the local ms group. People got weird when they came early on to meetings with everyone in wheelchairs and very few men😣. A lot of people quit coming as they didn’t want to be this way or the thought this was the way it would be. I like the humor you put the touches on sex or use there off. After twenty four plus years I am still upright and moving forward 👍. The sex thing is completely gone due to both ms and ♋️ Cancer, but that’s ok too, times change and I have chosen to adapt and move on and make the best of what I was blessed with 😊. Ken 🐾🐾

[RoyceNewton in reply to Kenu]

Only way to go mate, no use in complaining it does not get you anywhere

[carolek572 CommunityAmbassador in reply to RoyceNewton]

Complaining without offering solutions is pointless, my friend

[hairbrain4]

Once again great post! Your posts are very good for the newly diagnosed. And for those of us that are "seasoned MSers", we need a booster shot every now & then. Thank you!

[RoyceNewton in reply to hairbrain4]

always my pleasure