I can not think of a way that I can say this gently, so everybody gets this bluntly, This is a progressive illness. Everybody is supposed to get worse, some faster than others, some, the lucky ones, slower. I have never found out why this is, and I certainly have asked many people and often. Must really annoy Neurologists (Neuros), but they are paid the big money and I am paying so they get asked. I think that is only fair.
We all can do everything right, not quite sure what right is, and we still get worse, at least not better. This is the nature of our condition. Sad but true, we are not going to get better, "YET".
Our job, and yes it is a job, is to keep us as good as we can, so that day when there is a really good treatment available. We qualify to receive it. That is why "YOU" take your Disease Modifying Therapy (DMT) like clockwork. If it is to hard to take "YOU" tighten your bootstraps accept your fears and change. She\he who is the fittest at the best treatment arrival date wins, "YOU"do want to win don't "YOU"
Until that time, accept that this is a progressive disease and it is progressing, no matter what we do, or take. Just never stop taking your DMT and doing what needs to be done to get to that finish line, and do not despair remember it is progressive. Nobody knows exactly why it starts and nobody knows how to stop it 100%. Accept this and your heart will be lighter and "YOU" may even find coping a little easier
Royce
one day at a time until....
