take a Disease Modifying Therapy NOW - My MSAA Community

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take a Disease Modifying Therapy NOW

RoyceNewton
RoyceNewton

Not every DMT suits everybody. If your first one does not suit YOU, Try another then another. You WILL find the best one for you. THEN STICK WITH IT, you can not play against ms alone. YOU like me, like everybody needs a little help, accept it and take it. YOU are not weak, there is nothing to fear.

As they say chose a pill and we will show u opportunities You never imagined, & yes I know they are not the words, but YOU get my drift. TAKE your medicine NOW do not wait. Waiting is our companions goal not your friend.

Be the best you,

Royce

22 Replies
Jesmcd2
Jesmcd2CommunityAmbassador

What are you taking RoyceNewton ?

🤗💕

J🌠

RoyceNewton
RoyceNewton in reply to Jesmcd2

Betaferon/Bataseron for years, now Tecfidera, did try the 3 X Bata 1A for a month but it did not agree with me at all.

I am not taking any. When i had surgery and got pneumonia my neuro decided to keep me off until i recouped. In 2 weeks i go back to maybe start Ocverous.

Dr knows best if u r happy with it.

I am scared

Jesmcd2
Jesmcd2CommunityAmbassador in reply to Midgey_Midge06

It's ok to be scared Midgey_Midge06 🤗💕 you know we are here for you. And hopefully answer your questions to put your mind at ease.🤗💕

J🌠

I am afraid of how i am gonna get to infusion center - its in shreveport. My fiancé is hardly ever home and i have no one else.

Getting financial aid wen u r on medicare is a challenge. Its like dialing for dollars w the places that can help and they r always out of $ wen u call

And god help me if my hair falls out again i am gonna lose it

Sorry for the pity party. I just got off the treadmill i am hot sweaty and exhausted.

NEVER a pity party, feel free to say what you need to, always

Thanks 😁😁🤗🤗

It's ok to be scared you are not the only one. I am scared my trigeminal is coming back, so fear is really to be expected on this journey. Acknowledge your fear and own it, it really does help just takes practice.

I try to be upbeat and positive. But sometimes its a challenge

Just takes practice, give it time.

Jesmcd2
Jesmcd2CommunityAmbassador in reply to RoyceNewton

Hey Midgey_Midge06 🤗💕 your talking to the pro of being scared. 😒 The problem with it I have found, is it does me no good. I still have to face it. Unless it's Zombies, then y'll can kma. 😭

Take a look back, and see what you have overcome already! And be proud! And go from there!🤗💕

J🌠

🤗🤗💜💜

Hidden
Hidden

definitely!

prevention is key.

Thanks for reminding us. :)

Ocrevus is the strongest one they've got for MS and I like it a lot.

RoyceNewton
RoyceNewton in reply to Hidden

I think I might talk to my Neuro about it

Hidden
Hidden in reply to RoyceNewton

Least side effects of any drugs because just mild nausea and headaches for a few days after but that’s it

RoyceNewton
RoyceNewton in reply to Hidden

hmm thank you very much

good luck and that username is nut real positive it must have a good story

Hidden
Hidden in reply to RoyceNewton

My life is fine but I’m unhappy lol 😂

RoyceNewton
RoyceNewton in reply to Hidden

okay your logic there, just wondered, no need to reply

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