Back, sort of.: HI GUYS!!!! So you guys... - My MSAA Community

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Back, sort of.

rlh1974 profile image
19 Replies

HI GUYS!!!! So you guys know my Mayo Clinic was a friggin joke. The only thing good was the mattress. I PURCHASED IT AND AT LEAST HAVE SLEPT 95% better since I got home. I also found a great new counselor. Also I am going to a new Nuero to see if he possibly has a different treatment path for me. All my drugs cause me to fall constantly. Driving me up a wall. It truly is a great thing I have a high pain tolerance! Only problem is getting up! (Side note, If I see the Peter Popoff miracle spring water commercials one more time I may break the TV! ) Sorry, I digress! So, I am very much looking forward to this new Doc! I also have a new dog that has really helped changed my life, I will try and upload a pic. She is just truly my lovable little mutt! But I love her like a fat kid loves kids cake! I truly hope all is well with you my friends I will write again soon.

Also, My faith is being tested like never before. I feel down, angry, Pissed and lost. Not A lot hope left. So, If you could pray. That would be a good thing I guess, Even though I am really having a hard time believing, Every bit counts!

Anyway my friends, I love you all and think of you all frequently! Have an amazing day!

Rob

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rlh1974 profile image
rlh1974
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19 Replies
Royjr profile image
Royjr

🙏🏽🙏🏽🙏🏽👍🏼

kdali profile image
kdali

*gasp* *rubs eyes* HEY FRIEND!!!!! Welcome back!!!! 🎉 😍

Hah! “Mended mended mended, hallelujah!” Is it just a Midwest commercial or is everyone privy to the miracle spring water scam? Been watching Law and Order marathons again? 😂

GL with the new doc.

Labs are so much fun! How do you keep up with her?

Of course! Very sorry to hear your despair. Pupper must have arrived at just the right time.

You are loved too! Please don’t stay away because you feel so awful that there’s nothing to contribute or gain here. I’ll take a pissed off, lost and angry friend over silence any time you’re up for it. Come at me, bro!

Lots of love to you, and give your wife a hug for me 🤗

rlh1974 profile image
rlh1974 in reply to kdali

Watching Law & Order Criminal intent as we speak!!!!! LOL! Our supper is no lab t ll. She is part Pit, part pointer and another type that we don't know. That being said, She makes my other labs we have had look like they had NO ENERGY AT ALL! She is BONKER!!!! But we let her on the furniture, NOR BEDS! and she is such a cuddler! I love it! Good thing she is only 38lbs, unlike our 100lb labs!

Talk soon! Also come at me sis!

kdali profile image
kdali in reply to rlh1974

Haha!! Knew it!

Oh wow, she’s a pretty little thing! Oh no 😂 but bonkers can be great when you’re feeling low. Yes! That would be more crush than cuddle 😵 Maybe you won’t trip over this one!

🤗

kdali profile image
kdali in reply to rlh1974

When you finish CI, the Duck Tales reboot is wonderful!

CalfeeChick profile image
CalfeeChickCommunityAmbassador

So glad you are back! What a cool idea to buy your bed. Good sleep is so important to keeping a smile on your face😀😀😀 I will be praying and sending prayers for renewed faith and healing for you Rob. Do me a favor as I've had a tough few months, both mentally and MS-Wise with increased symptoms of balance, focus and cognitive stuff.. Had neuropsychological tests last week, will get results end of next week.. Should be interesting. Trying to figure out how to tape the phone call, I will also be requesting a written report. 🙏🙏🏻🙏🏼😊😊😊

CraigS profile image
CraigS

I wish you peace of mind and I hope you can come to terms with this.

I’m not the best role model, I still get pissed about the whole thing.

Realize that this is a journey, not a destination and that it will change as it goes on. I don’t pray, but I do hope.

Amore55 profile image
Amore55

Rob, it is so good to hear your voice! I swear that something is in the air, so many of us are really having some difficult times. I love your pup! You will be amazed how much better they make you feel.

You will be part of my special prayer list, I want so very much for you to find some relief. Sending love from me and sloppy doggy kisses from my pups! Love, Kelly

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Geeze your back again?? Just when.... 😒

🤣😂

Dude what are we here for? Did you forget? We can and will listen anytime you need us! The good the bad and the ugly! We get it!!

So stick around awhile rlh1974 🤗💕

~On The Wings of Angels~

J🌠

MS_Indestructible profile image
MS_Indestructible in reply to Jesmcd2

luv your "~On The Wings of Angels~" sig - awesome!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to MS_Indestructible

Thanks MS_Indestructible 😊 🤗💕

J🌠

dogdaddy profile image
dogdaddy

Nice dog. I love pit mixes they are up for anything at anytime and total love machines . I'm having a hell of a time finding a mattress that is comfortable too.

greaterexp profile image
greaterexp

I’m so happy for your good news and sorry about the less than good news.

Joni Earecksen Tada has a great daily devotional aimed particularly at those with disabilities. They help keep my focus on the best things, and I save every one that comes to my email. She also has more than one printed daily devotional. She suffers so much, but has found a way through it all with God’s help.

You’re in my prayers, and I’m glad you’re back!

hey Rob, good to hear from you. Sorry for the disappointments. I don't know anyone whose faith would not be challenged when dealing with the realities of MS. I know my views have changed. I feel more vulnerable now than back when I was "healthy". It's good to feel pissed, lost and angry. I know for me, in the early days of my dx, I used a tennis racket to beat the stuffing out of my sofa. Or if you have a carpet that is in need of a good dusting, . . . you get the idea. It takes talent to not take your anger out on a friend or loved one, even if is a "mild" release. Hope to hear from you more. Vent or rant hear, we can relate. Be good to you, always, my friend

MS_Indestructible profile image
MS_Indestructible in reply to MS_Indestructible

Oops, I love your pup. My sister and her boyfriend have an older vision. He is very active but will drop on the sofa with you in a second.

carolek572 profile image
carolek572CommunityAmbassador

Hey rlh1974,

My thoughts and prayers coming your way!

I was reading about your troubles and noticed that you said that have a great new counselor, and saw your puppy picture, and put the two together, and well, I approved of your great new counselor! She truly looks sincere, lovable, and gosh darn adorable. Does she accept new patients? Just kidding! Does she have a name?

NEVER GIVE UP NEVER GIVE IN

Carole :-D

Kitsey profile image
Kitsey

Wishing you a very good result from your new neuro. Praying that you will be feeling better soon. Your pup is wonderful 🐾🐾. I miss mine every minute of every day.

Buddy2009 profile image
Buddy2009

Rob, Hope all goes well for You and your new Pup !

luvhair profile image
luvhair

Love you..keep on keeping on!!!

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The interesting thing is that you can’t see it just by looking at me. Love to all of you, Kelly