this truly is a journey with Ms, I am so used to planning, being on time,working hard, taking care of everyone else.This does not work with this severe inconvience. No wonder one of the first prescriptions you get is an anti-depressant.I have got to get my mind back on track! When you want to vacume, you have to plan,cook plan, shop plan, if I am going by myself, does the store have carts, do they have any curbs to step up on,close parking spots???Who says there is a cognitive decline, the planning, oh the planning.let's talk about emotions, serious boo-hoo.I have been blessed all by
of this, I have never missed a paycheck since I left work in 2015,it first was LTD and when it was going to end SSD kicked in the same month, I am still walking with a cane but walking, my Meds have always picked up by the manufacturer and free, and we own a business. God has a plan, sure would like to know what that would be. thanks for being my screaming,safe place pam
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pamgarner
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I'm glad you can find this to be your safe place! pamgarner 🤗💕 How we wish we could do more!
MS it's always a roller coaster. With is it's ups and downs. And plannings!😕
So when it's time, YOUR time, you learn to expect the unexpected. And give this monster the day it needs, and claim the days YOU CAN! 🤗💕 AS YOUR OWN! 😊 Chin up!
I get the rage 100%. I am like a toddler- I can’t explain what I am upset about, my emotions are way out of proportion to the situation and I get so frustrated with myself that I want to pound on the bed with my fist. I am angry at my inability to express myself, angry that I have no emotional control and it turns into rage. Then there were the uncontrollable crying fits. Finally my Dr put me on PBA medication and I cried so much less often and for just a few minutes at a time instead of an hour or more every morning. I don’t have all the symptoms of PBA, but Nuedexta has helped even me out and made me feel less out of control. (Outta Hand for those old enough to remember St Elmo’s Fire)
Yes, yes Pam, I hear ya! & thanks for coming to your safe place to scream & vent! It's good to get out that anger w-those of us who've been there too! I know it's frustrating too, now bout G-D/YHVH's plan for us is to survive & keep warring on! Agsinst this M. on S terrorist inside of us & to hold newbies by the hand & help them understand & stay strong & just get along daily as True M.S. warriors!🙏🙏🙏❤💛💙💜💚😍 We are stronger together & Strength in numbers! Blessings & Prayers for ya! & You too Tracey Short!---Jazmine
These last two months we’ll year but two months of diagnosis and I fee the same sometimes I just want to scream and cry from the sheer frustration of everything.
Welcome and yes on the scream.It is one of those emotions that God has given us, and yes a safe place.Ive never planned so much in my life so i must have some brain left.I wish others could see beyond the illness the person inside.Best wishes, jj
The frustration will lessen but as you progress you will get angry at yourself vent it when it happens. Be grateful for the things you can still do but take longer. I had the most wonderful spouse but God needed him back 12 years ago so I talk with him daily and when I need his help I ask. I can no longer drive so loosing my independence was very frustrating so I look at the things I can still do and say thank you. Always know God only gives us what He knows we can bare and think of it as a blessing that He believes you are that strong. Keep that chin up high
More than anger and crying, I get scared of what the future may hold and cry. Not a pity party, just flt out scared. I had a good cry yesterday as I realized my PPMS was progressing faster than what I want to acknowledge. I often play the game of "if I don't acknowledge it, it does not exist". That works for time. Unfortunately, the elephant in the room eventually demands to be acknowledged. I had already accepted what my limitations are. However, when I realize my progression, it scares the crap out of me.
I also get frightened,seems like daily, something else is wisked away. Some things I have learned which I consider gifts,humility,kindness, still working on patience and probably always will, not one of my strengths, work on it daily, bravery, courage and the dedication of love from others,so there are lovely things I recognize about this disease but when it is overwhelming, YIKES
I find a lot of relief in crying and screaming. it's a lot simpler than trying to find the right words to explain to someone feelings of anger and sadness that you can't really put your head around... I remember going on a roller coaster before my DX. I screamed all the time and felt so good afterward. so go and scream! better than keeping your frustration inside....
You sound very much like I feel, 2000 things rolling around in my brain and the rest of me is in slow motion. Last week, my neuropsychologist said I might want to try some CBD gummy bears to slow my brain down. They are derived from Marijuana, except don't have the THC in it. It's ok to scream and plan, plan plan. I'm personally keeping the Post-it note people in business. We're here for you and will try to be helpful to you.. Keep on coming back!
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sometimes I just want to scream and cry from the sheer frustration of everything. 
Just want to vent
endless TN & soft bowel & just want to die
Hobbies anyone? Big them out and let's share them!
