Jcv: I know i wrote this before but they... - My MSAA Community

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Jcv

Lisahiatt profile image
6 Replies

I know i wrote this before but they pushin me to take abagio only one u can take with this jcv..anyone have this and what are u takn..my jcv went down in half..miracle..no new lesions.but i jyst feel like its progressing due to how crappy i feel just feels like im not going into remissionat all..i pack a little for a bit..then next few days im down..i tell ya i usedto move my whole family in a day in have everything organized not with this beast ..thank the Lordfor the landlord i have he knows whats going on with me section 8 inspecting tomorrow im sure it will pass.nthen he let me start moving im moving above me in a one bedroom my son ended up movn out ..so i never been alone..but my lanlord his awesome i used to dobhair n im not willingto let my nice clothes go im waiting on a miracle.nbut i have like 5 full closets i got rid of bout 2 closets of clothes he took me up to new b onebedroom they made 2 more closetsfor me and a really big shelving unit in bathroom its all been gutted and redone.thts what you call a caring man..i just been crying..and i dont have to really clean this huge three bedroom of mine because he bought the complex last march n when people move out he totally guts them..so im really blessed to have such a caring landlord..he was worried about 3rd floor but doctors ok it. Ive got my dogs n my brethingbreathing been kinda hard so going up n down they think will be good ..Ok sorry to vent i dont my old team members..i didnt think i would get removed..but im gonna try n check in as much as i can have good nite everyone

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Lisahiatt
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6 Replies
Allen5280 profile image
Allen5280

Lisahiatt , hello I Have a high JCV and I am on Ocrevus. I just finished my 3 dose, i have been on it for a little over 12 months. I wanted to reply to you a little more in depth but my pre-infusion meds have my head spinning and its difficult to read and write at the moment. I hooe you find somethjng to combat this monster

Thoughts and prayers

Allen

jimeka profile image
jimeka

I don’t know anything about Aubagio but I wish you well with your move. Blessings Jimeka 🦋 🍫

Iona60 profile image
Iona60

Ask about ocrevus.

Morllyn profile image
Morllyn

I hope your move goes well and then you can rest. That sounds like a great landlord!

My husband and I just finished moving my handicapped daughter to her new apartment and I am worn out.

bxrmom profile image
bxrmom

Good luck on your move Lisahiatt Please keep us updated on how it goes! I do not know anything about the drug you are on, sorry. Best of luck on it, I hope that it helps you.

Jessie

Jenn29 profile image
Jenn29

I spoke with a neurologist about Audagio and the jcv virus is not an issue with that medication. I've been begging my current neurologist to put me on it but it really seems like with him if the medicine isn't effected by that virus it isn't good enough for him to prescribe.

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