Jcv: I know i wrote this before but they... - My MSAA Community

My MSAA Community

9,440 members21,224 posts

Jcv

Lisahiatt profile image
6 Replies

I know i wrote this before but they pushin me to take abagio only one u can take with this jcv..anyone have this and what are u takn..my jcv went down in half..miracle..no new lesions.but i jyst feel like its progressing due to how crappy i feel just feels like im not going into remissionat all..i pack a little for a bit..then next few days im down..i tell ya i usedto move my whole family in a day in have everything organized not with this beast ..thank the Lordfor the landlord i have he knows whats going on with me section 8 inspecting tomorrow im sure it will pass.nthen he let me start moving im moving above me in a one bedroom my son ended up movn out ..so i never been alone..but my lanlord his awesome i used to dobhair n im not willingto let my nice clothes go im waiting on a miracle.nbut i have like 5 full closets i got rid of bout 2 closets of clothes he took me up to new b onebedroom they made 2 more closetsfor me and a really big shelving unit in bathroom its all been gutted and redone.thts what you call a caring man..i just been crying..and i dont have to really clean this huge three bedroom of mine because he bought the complex last march n when people move out he totally guts them..so im really blessed to have such a caring landlord..he was worried about 3rd floor but doctors ok it. Ive got my dogs n my brethingbreathing been kinda hard so going up n down they think will be good ..Ok sorry to vent i dont my old team members..i didnt think i would get removed..but im gonna try n check in as much as i can have good nite everyone

Written by
Lisahiatt profile image
Lisahiatt
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Allen5280 profile image
Allen5280

Lisahiatt , hello I Have a high JCV and I am on Ocrevus. I just finished my 3 dose, i have been on it for a little over 12 months. I wanted to reply to you a little more in depth but my pre-infusion meds have my head spinning and its difficult to read and write at the moment. I hooe you find somethjng to combat this monster

Thoughts and prayers

Allen

jimeka profile image
jimeka

I don’t know anything about Aubagio but I wish you well with your move. Blessings Jimeka 🦋 🍫

Iona60 profile image
Iona60

Ask about ocrevus.

Morllyn profile image
Morllyn

I hope your move goes well and then you can rest. That sounds like a great landlord!

My husband and I just finished moving my handicapped daughter to her new apartment and I am worn out.

bxrmom profile image
bxrmom

Good luck on your move Lisahiatt Please keep us updated on how it goes! I do not know anything about the drug you are on, sorry. Best of luck on it, I hope that it helps you.

Jessie

Jenn29 profile image
Jenn29

I spoke with a neurologist about Audagio and the jcv virus is not an issue with that medication. I've been begging my current neurologist to put me on it but it really seems like with him if the medicine isn't effected by that virus it isn't good enough for him to prescribe.

Not what you're looking for?

You may also like...

Jcv

Hi all..does anyone have jcv and are you on any kind of treatment..the dr ordered abagio but im...
luvhair profile image

Mri

Hi everyone ..havent been on in awhile..ups n downs ya know..well pretty good news no new...
luvhair profile image

Update Results of JCV Test - Positive

Well it’s Friday and I have been on pins and needles all week. The waiting game is horrible and...
KrittyKat60 profile image

Help

I dont know,just got back from therapist,,i know how horrible my life is,i would love to be just...
luvhair profile image

Art therapy

Hi everyone..been pretty busy i hope every one is doing as good as possible...well as yall know how...
luvhair profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.