Hello I hope u all don't mind im just saying hello and i have been diagnosed today and just in time for Christmas 😨 im a staff nurse in the NHS in the UK. Don't know what type yet but have lesions in brain, c-spine and t-spine unfortunately. My boyfriend was a bit shocked but he's ok bless him and a lot of my friends I've told them today. I hope u are all ok and it does seem a lovely group of very nice people.
janetb1968 hi and welcome, fellow uk person. Sorry that we have to meet under such circumstances but you have come to a very friendly family forum. You can vent, cry, laugh, share hobbies, anything, we all have ms in common. Not one of us is the same, but we all have similar symptoms. I was diagnosed 8 years ago now, PPMS, the NHS has provided a ms nurse, that I see twice a year, a neurologist which I see in hull once a year and an AFO for foot drop. Otherwise they have told me there is nothing they can do. I hope you are in a better area for support. Blessings Jimeka 🌈 🦋
Hi jimeka
Lovely to meet you im in Lancashire and it will be Preston when I get started with treatment im 49 have a lovely boyfriend and 2 cats. I'm a staff nurse but have been off since end of May. Not sure what's going to happen but have to take each day as it comes.
Take care Janet x
janetb1968 welcome to this wonderful group of people. Everyone is so carrying, thoughtful, and helpful if you have questions. I'm Jessie and I was dx with RRMS in 2006 after getting sudden blurry vision which lead to and mri, and then all the various tests. I started out on Copxone 20mg every day then when the 40mg/ 3 times a week became available I chose to go on that. After starting to run out of locations to do my injections I started Tecfidera earlier this year and will be doing for m y 6 month follow up on it next week.
Again, welcome. Look forward to meeting you.
Jessie
Hello Jessie
Nice to meet u im just off to bed (UK time) I'll message u again tommrow if that's ok?
Night night 😊
Janetb1968
Sorry you are here, but we are here to listen to you and you can listen to us We are a good group we even have funny things to say but we have other things to say about our health that could help you. Have a good day. I live in the USA 🇺🇸 Masshealth and I have MS and was diagnosed in 2004
janetb1968 , I hope you are doing alright and that the holidays are peaceful for you.
Welcome to the group!
🤚 Welcome to the cumminty of MS’ers.😉 I’m Ken and was diagnosed 1996 after have optic nerits in my right eye 👁. Been on several medication, now on Aubigo orally. Been working good for 11 months 👍🤗 Hope you can get on a meditation that works for you 👍 Nice meeting you and look 👀 forward hearing more 😉🙏🙏❤️
janetb1968
Hello, I'll look forward to chatting with another nurse. Sorry tho about your diagnosis
Welcome, janetb1968 .
Good morning, Janet!
Sorry to meet this way. This forum is full of wonderful people. I have learned so much from them! No subject is taboo and it's a great place to vent when you just need to get things off your chest.
Hi janetb1968 ...I'm sorry you had to join the club of MS that no one wants membership in. This is a friendly forum where we learn from and support each other.
I was diagnosed in 1999 and am doing well considering. My neuro says I'm still RRMS. My career was in technology but I had to retire about a year ago when I couldn't keep up.
Hello everyone
Really lovely to hear from u all im still stunned but im sure i will get through this🤔🤔🤔🤔. My worry is the neurologist has not said what type I am he said it was early to say it yet. Sorry im just offloading. Hope u are all ok and thank u for the lovely welcomes x
Offload all you want. Getting that initial diagnosis is really hard. Going forward isn't exactly a picnic but along the way there's an excellent chance you will learn to build strength and courage that you might not realized you have. There still will be much joy, beauty, and many good things to discover in life.
Thank u MrBigCat I'll do my best and love the cat pic x 🐱🐱🐱🐱
Welcome! Everyone here is great. You can talk about all kinds of things here. Mostly MS, but other topics are welcome.
I'm jealous of you folks in the UK. I really with I lived there. If I was younger....
Welcome to this wonderful supportive site!! I was diagnosed with progressive MS and it's wearing me down financially physically and emotionally right now. The MS Society called me this past week and they are going to help me with personal health care and some other things I need help with. I'm praying for you!!! That is a blessing you are on this site!! What symptoms were you having??
Look forward to talking to you!!
God bless you!!
Hi doveflyfree my symptoms have been mainly unsteadiness weakness in legs altered sensations under my toes. I did have numbness in face but that's gone now xx no other symptoms
Thank you for sharing!! Please enjoy yourself and your sleep and life!!! I'm sorry you have MS!!! It's a crappy illness and really upsets every part of your life!! Live it up and live every day to the fullest!! Love and be loved!!
And to you as well.
Hmm rewrite your future
MS relapse indications
Neurologist just called!
