Surry a little unexpected isn't it. First off let me say you are NOT going to die because of this illness. It is NOT fatal, though life certainly is. How many people do YOU know who are not vampires have that live forever? None so I make my point. Life is fatal, ms is NOT. So stop reading and have a good strong cry, it is okay I encourage it, I did lots at first and I still get frustrated and upset after 19 years. Crying is okay it does not make you weak or any less of anything. So cry get used to it you may do it a lot over the years. Yes You do have years and years, so calm down cry and prepare yourself for an epic JOURNEY. For JOURNEY it is, we like to call it LIFE, neat name is it not?
Your life has changed from what you expected, what you planned what you hoped for. CHANGE and the UNEXPECTED are now your friends. YOU have a CHOICE , to be flexible, or not to be. Bend with the breezes, gales, storms, that are going to hit you or BEND, be like BAMBOO, unleash your inner strength but be flexible YOU CAN survive and THRIVE in this storm. It will NOT BREAK you, You my friend are UNBREAKABLE you will BEND you will travel the road no matter what obstacles are put in front of you because YOU CAN YOU WILL and YOU DO.
Look everywhere and see inspiration all around you. Hold it and use it to strengthen you during the tough times. YOU did something once that YOU thought was hard so YOU can do it again & again & again if need be, why, because YOU are YOU, and believe it YOU CAN.
Just think of that annoying weed growing in the cracks, One day it grows big and strong and tears that pavement to pieces. When you cry despair or hurt just think of that weed & remember that YOU can.
On a practical physical note, TAKE your Disease Modifying Therapy. avoid snake oil salesman, be gentle on your body, forgive others, limit your expectations. Have NEW DREAMS and live them as much as you can. Be flexible and get educated on your disease.
Good luck, sorry wrong word you do not need luck YOU just need to start doing. Travel your ms journey and enjoy thinking about how to get around the obstacles that are going to cine up. It is like a game of chess, Think ahead, but we wary you are playing against a very tricksy opponent. You really need to be on your A+ game.
Your bus driver for today,
Royce
Only 19 years and counting.
Written by
RoyceNewton
To view profiles and participate in discussions please or .
Thanks for the bus ride Royce especially for us recently diagnosed. I was dx April last year but have learned a lot in a short period. Most importantly to accept what’s going on and to keep on living as best you can. Don’t just give up. Keep on living.
Again you have used your gift of words to lift us up and I thank you.
Well that's not exactly true is it! MS can/through various means, such as pneumonia facilitate ones demise. Not to mention a 7-10 year (on average) life decrease. So just like aids if it can't get you, it can lend a hand!
I had pneumonia not to long ago. It was awful. But i fought my way thru that. We just gotta keep on keeping on. My mom made it to 83 with Alzheimers. My dad is 91 and still healthy and independent. I am ok living until 83 or so
It's facts that are based in myths is all I'm saying! Downplaying this affliction and it's adherent symptoms have lead many to excepting these fallacies! From someone who's struggled with this for over 13 years without docs even taking a gander has left me broken! To be a disease with varying levels of disabilities, the consensus is that all cases are averaging the same is just not right!!! Not stirring the pot just not accepting the unacceptable any longer.
Don’t forget about the increased risk of suicide. I felt suicidal when I was diagnosed in 1999. (Weeks after earning my attorney license) Over the years I have felt more depressed and had many days when I wake up crying because I don’t want to live. Antidepressants have a minimal affect.
Tracey, I think u were probably a month or two after me, think I was DX'D in August or September 98, to be honest not really that important, my career as an airline pilot was already over, icing on the cake really. Cry as u need to talk if u like but do stay ell my dear, make that CHOICE to stay ell and look after you.
Crying is good, antidepressants do NOT really work very well I have found. Curiosity question, what are your goals NOW?
My son will graduate high school in 2020. He is my only child and many times over the years he was the only reason I stuck it out. As he has gotten older I no longer feel the surge of accomplishment I used to get after getting him off to school every day. My husband says that I don’t need to get up with him anymore and it’s true he can pick his clothes and remember to grab a water bottle without me waking up. I have no idea what will keep me going after he goes away to school . I don’t have any other goals
You are correct. None of us or anyone else knows what tomorrow will bring. Live for today. Last year in my part of the country there was a bad car accident. As you can guess the people lost we’re not in the wrong. Drunk driver tried passing a vehicle in a no passing zone on a two lane road. The entire family of 5 was lost. Mother father and 3 children. They were not planning on leaving this earth. None of us knows when or where. (Don’t think I want to know). Live for the day and do the best you can with what you have.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
