Searching better health

[Gcann61]

I have been taking tecfidera 2 yrs and did not work as a have another lesion in brain and relapse, effecting my right side like a stroke. Started Tysabri and looking for stories of results or way to improve health

[Kenu]

I was on Tysabri for seven years and had no relapses and only side effects was fatigue for couple days. I was still working so I had them on Friday afternoon and by Monday I was back to so called normal 🤷🏼‍♂️. I would probably still be on it, but I got stage four throat cancer and had to go off it 😡. I am now on Aubagio for the last fifteen months and doing great 👍 No lesions and no side effects 👍. Hope it works well for you 👍🙏🐾 Ken

[Gcann61 in reply to Kenu]

Thanks for sharing your story,Glad you are doing better, time will tell, thanks again

[Tinker-Belle]

I've been on both Tysabri and Tecfidera at one point. To me it seems like all of the drugs effect people differently. I hope this change is beneficial for you. As of yet, it doesn't seem to me like the perfect wonder drug has been developed. Afterall, we still have MS in all of its varied forms. However, some folks seem to be able to find that match that keeps them stable, at least for a long while. I hope Tysabri works well for you. Continue doing all you can. Be proactive. Eat healthy. Exercise. And, listen to your body. Best wishes on this new part of your journey!!

[Gcann61 in reply to Tinker-Belle]

Thanks, only a few days off tecfidera and my skin is getting better, just need to work on walking better, thanks for your reply!

[Momjules]

I too was on tecfidera for 16 monthes and when I got my mris back , I had new active lesions in my neck and spinal cord.

This medicine did not do its job for me.

I was immediately taken off it.

I have now had a infusion of octuvus?

Hope I spelled it right!

I don’t know if it will work.

I also had a med for the inflammation.

I believe this med did nothing for me.

Be careful and keep up with your doctor.

Good luck to you!

[Gcann61 in reply to Momjules]

Ocrevus is my next option after 1 year on Tysabri since I have low level of jv virus. There really is no inflammation meds other than over the counter and they do not work well for me. Thanks and will have to give it time, hope Ocrevus works good for you as I have read good things about it 😊

[Jesmcd2 CommunityAmbassador]

Hi Gcann61 welcome I just wanted to say hi!😊

Jump in anywhere! 🤗💕

J🌠

[Momjules]

Hi!

Please look up acthar

It’s for relapses or flare up of ms.

[MS_Indestructible]

I've been on Rituxan for several years, it is an off label use for MS. Ocrevus is the improved version of Rituxan that is specifically approved for MS. In the past many MS patients who have to move off Tysabri due to rising jcv numbers were put on Rituxan with great success. I think you are on the right track and hopefully it will work well for you. I recently was deemed stable with my MS since I was first dx in 2007. I credit Rituxan for that. Welcome to the group, many of us are pretty active here. You can share your fears, concerns or just blow off steam from those bad days. There are no dumb questions here [just numb people]. Pull up a chair and stay awhile ~terry

[Gcann61 in reply to MS_Indestructible]

Thanks for story, plan is in 6 months or sooner after another JV test, dr would prefer me to take Ocrevus. Only reason I was put on Tysabri was 2nd choice and already was on Biogen product with copay assistance. Both DMT are great choices, just the very small risk of PML developing if JV gets to high concerns me taking Tysabri , but I am sure there are risks with all DMT. My goal is to figure out how to calm lesions in my thoracic spinal cord area so I can walk better and use stairs, wish they had a medicine/ treatment for just this and I would be good as gold again 😊👍 I am very thankful it is not worse 😊