Life Update

[StacyHayward]

It’s been a while, I know. I saw my neuro two weeks ago. We got the chance to do an exam and go over the mri I had in August. Turns out I had no changes at all! I hadn’t had one in six years and one about five years before that, so my MRI has been stable about ten years. It’s also been about six years since I had a relapse. Both of those are great news, of course, but left me wondering what that means for my MS. I still experience many daily issues and am slowly going downhill. We decided I’ve hit the secondary Progressive MS stage of life. Since I’m doing so well, for me it’s just a name change, nothing more. The goal is to keep the disability progression slow.

On another note, I’ve been exercising nearly six days a week since November. I’m trying to train myself to think of exercising as essential as taking my meds. We are lucky enough to have a treadmill and elliptical so I switch every other day. When I started I could only do 8 minutes on the elliptical before shaking uncontrollably. Now I can do 30 on the elliptical and 45 on the treadmill. And I can still walk when I’m done. My neuro was impressed and said don’t stop!

For nonMS news, we had the fun of replacing the sewer main in our house this week, which meant digging up the foundation. The plumbers did a great job. Also my son left for California in January. He’ll be in LA until he can get a visa to go to Ukraine. I miss him and especially all the help he gave me at home and driving me around. But I’m not missing him so much I’m falling apart. Letting kids grow up is hard!

[jimeka]

It’s hard when your children leave the nest, there is an empty space that you don’t want to fill, but why do we have kids? We have so much fun when they are small, then they grow up and that’s when you realise what a great job you have done and you can sit back and enjoy their accomplishments. As for your exercise program, it’s brilliant what you are doing, keep it up, it’s obviously working, well done. Any puzzles recently? Have you done the clear glass one yet? If you want a challenge? Blessings Jimeka 🤗

[StacyHayward in reply to jimeka]

Here you go

I’m a huge Dumbo fan and my sister sent this to me-minus the box!

[jimeka in reply to StacyHayward]

That looks good and very intricate, well done 👍

[Kenu]

I can relate to everything that you said. Being stable but yet small or slower progression with a name change. Daily issues but moving to SPMS. Just hopefully things stay the same with slow progression 🤞🙏👍😉👍 Ken 🐾🐾🐾🐾

[StacyHayward in reply to Kenu]

Thanks

[anaishunter]

Congrats on sticking to the exercise routine. it's so important. thank you for sharing, very inspiring.

[Allen5280]

Thank you so much for the update. I recently changed neuros and it has been decised i am also SPMS and your story is an encouragement to me. Ive dallen into a slump and my wxerciae habbits have been pushed aside. I need to get back into it once again before i can't. Thank you so much for your update.

[twooldcrows]

wow you can really do alot of exercise that is great ...i use to do it alot and not doing since i don't know but i think it was just before Thanksgiving for i got busy with gifts for Christmas and just haven't got back to it and i know that i haven't ..got to start back up to it ...wow can't believe you are able to do that much so i better get back to it ...thank you for the push ..about the plumbing wow ..major and yes we have to let go of the kids and really love and miss them because for one thing we can't see that all is good ....miss seeing everyone in our lives ...can't wait to get together with all of them ...camping with all will be fun..take care and be safe...don't worry able it getting into another stage you are just who you are and it sounds like you are dealing with it great ...keep up on the keeping up ....love and happiness...

[Neworleanslady]

You’ve inspired me to exercise more

[Violonchelo]

Is necessary to give thanks to all !!!😄😄😄

[mrsmike9]

Why is your son going to the Ukraine? You want a couple of my boys?

Met with my financial advisor and was asked a bunch of questions about how I feel about things. One was if I would be anxious to have kids move home. Heck no! I'm worried they'll never leave!

Good for you on the workouts! I wish I had room for a machine of some type here. Probably a stationary bike, but I don't have the room. Hey! If I can ever get the last two kids to move out I can use one of their rooms!

[StacyHayward in reply to mrsmike9]

My son is serving a religious mission. He is called to Ukraine but due to covid can’t get his visa.

[StacyHayward in reply to mrsmike9]

Send your boys over! I can keep them busy!

[mrsmike9 in reply to StacyHayward]

You sure? Both are disabled.