MRI and Ocrevus

[Raingrrl]

I finally got the results from my MRI that was taken after my second full dose of OCREVUS. It shows that I'm still stable. So this means that my 5 years of stability on Tysabri are continuing on Ocrevus. I'm grateful for this and don't expect improvements. I also feel the same as I have the last 6 years with the same ol' symptoms coming and going. That's important to me because MRI's don't show everything even though they are the best tool we have currently. Ocrevus wasn't tested in my age group so anyone over 55 like me is a lab rat so I'm doubly glad for the stability given that fact.

[carolek572 CommunityAmbassador]

From one 'lab rat' to another ~ continued success to both of us!

[erash in reply to carolek572]

A lot of ‘ol lab rats 🐀 around here

[hairbrain4 in reply to carolek572]

Count me in as a lab rat too!

[erash]

Good news, good results, 👍

[greaterexp]

Thank you for posting this wonderful news! I'm so happy for you! I'm thinking about becoming a lab rat, myself!

[lbenmaor]

Raingrrl, I'm glad you're doing better.

Leslie

[jimeka]

Let’s pray your stability continues, blessings Jimeka 😊

[kdali]

Fantastic news!!! 🎉 I’m so happy for you!

[anaishunter]

good to hear! this is grear news. Do you have details on your MRI?

when you say stable, does it mean no new lesion, no active lesion, both....? it's all good news, just curious.

[Jazzihorsecat]

👍😎😀Great news raingrrl

[Momjules]

Good for you!!

That news makes you feel good!

[Elizt3]

Great news!! Lab rats are essential 😀

[Iona60]

Great news. I'm like you, stable MRI on ocrevus. If I'm remembering correctly, My neurologist used the term "degenerative inflammation" for what it's not seen on an MRI, in my case.

[Juleigh21]

So glad to hear this as I may be a lab rat myself some day!!

[Jesmcd2 CommunityAmbassador in reply to Juleigh21]

🤣😂🤣

[RoseySawyer]

Awesome! 😊❤🌷

[kycmary]

I'm a lab rat too, was on Tysabri & running stable but my JC count had been positive for a while & was getting scary. I went to Ocrevus had my first half does in Dec. will get first full dose in June. I feel good hubby says I look brighter in my eyes & my over all. I would get very tired my 4th week on Tysabri but I have NOT had that very tired feeling & just checked I'm 6 weeks since 2nd half Ocrevus. I go day by day I ran the vacuum over 2 rooms yesterday & didn't have to stop & rest between rooms or go lay down for an hour. WOW! until I typed it I had not realized that!!

[kycmary]

I'm having a celebrate with my self I'll b/b

[Hidden]

👏😊👍

[Raingrrl]

Thanks everyone!

I had both a brain and spinal MRI this time. For those who are curious my MRI results included these statements:

Stable non-enhancing intracranial plaque burden.

Stable non-enhancing cervical and upper thoracic cord plaque burden. There were also statements that overall number and distribution of lesions is unchanged.

Usually I only get a brain MRI because that is where I have a significant number of lesions. I don’t have nearly as many in in my spine. We did the spine also this time because I think one or both of my last two spectacular falls have caused some problems in my neck.

[kdali in reply to Raingrrl]

Stable! 🎉👏 Unchanged! 🎉👏

[mrsmike9]

Glad things seem to be stable. I wish the MRI's showed what was going on in the grey matter as well as the white. I've read there are changes in the grey but nobody ever checks that. Because, for those of us are "stable", why are there changes and they don't show up????

[Raingrrl in reply to mrsmike9]

mrsmike9 ... You make a good point so I did a quick Google search and found that there have been studies related to the MS damage to grey matter. (The protocol is different than that used in the standard MS brain MRI's that depict mostly white matter. ) It looks like the studies are ongoing. No idea why the current protocol doesn't include more related to grey matter since grey matter damage seems to be more significant in terms of MS disability. I could have missed something in the stuff I read because its mostly in a vocabulary that is tough for me to get through. ( I don't have a science or medical background.)

I haven't noticed any changes in my symptoms or abilities. Just the same old stuff that ebbs and flows.