3rd update

[janetb1968]

Hello all

Saw the MS nurse who has suggested Tysabri got to think about it. Saw my neurologist who said that the iv steroids will start tomorrow. Had a VEP today also hope u are all ok xxxx

[Good_enough]

Tysabri is the most effective for me. I've tried others and was sensitive to others.

[jimeka]

janetb1968 how did the LP go? How did the VEP go? Know any results yet? I don't know anything about any of the drugs so the only advice I can give, is research them all. You may have to try them and see how your body reacts to them. Hope everything else is ok. Hope steroids go ok, hugs Jimeka 🤗 🍫

[Kenu]

@janetb1968 Sure glad to hear things are moving along 👍. I was on Tysabri for seven years and was one of the best drugs I had 👌. The only reason I don’t is that I had stage four throat cancer and had to go off😞bummer 🤬 The side effect that I had was fatigue that night and the next day. I did infusion on Friday and was able to keep working for seven additional years 👍. Any questions feel free to ask 🤷🏼‍♂️. This was a great drug for me 😉 Take care and I hope this works 👍 Had no exacerbation while on it. 👍 Good luck and keep us informed 🤷🏼‍♂️. 😃🐶🐾🐩🙏 Ken

[janetb1968 in reply to Kenu]

Thanks Kenu so sorry about the throat cancer 😕😕😕😕 I bet that was a bitter blow on top of the MS. Bless u hun and thank u for the advice I'm going to go for it when I see the MS nurse on Monday xxx 🤔

[CalfeeChick CommunityAmbassador in reply to Kenu]

Wow, so sorry about the throat cancer. That had to be much more scary than MS. You are Warrior without doubt! 😊👍🎉

[Jacksonlowerkkeys]

Oh, now we’re all Doctors.

[janetb1968 in reply to Jacksonlowerkkeys]

Who's the doctor?

[Jesmcd2 CommunityAmbassador in reply to janetb1968]

How are you doing today janetb1968 ?😊 How long are they keeping you locked up?😐 and do you have enough chocolate 🍫?😳 😀

Have you checked out S.E.A.R.C.H. from MSAA yet? mymsaa.org/ms-information/s... it gives you an idea on the treatment options available. Although I must say they are for the U.S. Not necessarily for the U.K..😊

I hope it helps a bit.😊💕

J 🌠

[janetb1968 in reply to Jesmcd2]

Hi Jesmcd2 im hoping to be home on sometime Wednesday thanks. Food is ok but it's the NHS could be better but nevermind xxx 🙄

[SometimesCrazy in reply to janetb1968]

Hello EVERYONE, because this is for everyone, and I know Janet will be a good sport about this, hi Janet, I have no idea what all the abbreviations are. NHS? Somebody posted earlier with an ANA and a couple of others. Are these things I need to learn and if they are can somebody please send me a list...lol.

[janetb1968 in reply to SometimesCrazy]

Sorry SometimesCrazy NHS stands for National Health service and is the free from birth till death health service here in the UK. It does have its ' problems at times especially the winter bed crisis. But most Brits would never lose it. I'm a staff nurse in my local hospital so I have an idea how it works 🤔🤔🤔🤔 Now ANA as far as I know stand for anti nuclear antibody .....being a staff nurse for 27 years I've heard the abbreviation but no expert I could be wrong 😊😊😊😊xxx

[Jesmcd2 CommunityAmbassador in reply to SometimesCrazy]

SometimesCrazy I'm glad you brought that up, as CalfeeChick and I are working (slowly) on a list for next month's news!!!💕

Jes 🌠

[Doubled51]

Hope you escape soon before the chocolate withdrawals set in.🍫🍫🍫🍫🍫😅😅

Donnie

[janetb1968 in reply to Doubled51]

🍫🍫🍫🍫🍫🍫🍫

[Ms-Indestructible]

check out Rituxan therapy. I've been on it for 2 years and it is safer than Tysabri. It is good for RRMS and SPMS, which is what I have. I don't have any side effects with the Rituxan.

[janetb1968 in reply to Ms-Indestructible]

Ms-Indestructible I'll speak to my MS nurse tomorrow thanks 😊😊😊😊