Everyone's it's Fancy1959. It has been a while since I have posted anything on the site and I wanted to let you know that I'm having a hard time in general and just can't bring myself to post much when there's not a lot of good news. I've been on ocrevus for 4 weeks today. My spasticity comes and goes now but is does not plagues me each and every day like it used. So that's a very positive aspect. But over the summer my disabilities continue to grow weighing heavily upon me. My left hand is often very hard to uncurl and to have much function with it. My feet are rolling under like club feet and I have been put on special Arch inserts to help stop the clubfoot from developing into a worse condition. To top this off my right knee is still very sore but it's hanging in there. There's still swelling in the knee and it often aches quite a bit. Now on to my right shoulder. On November 13th I am tentatively schedule for a reverse shoulder replacement. It is so bad a standard replacement cannot be done on it. I tried to get it done sooner but there wasn't any availability and things had to be pre approved Etc. I wanted to be a little more human for Thanksgiving but I don't think that's going to happen. The pain in it has been increasing steadily and it is a constant throbbing to sharp pain in it at this point. And I still have almost a month until we go in to fix it. Yuck. I really don't want major shoulder surgery but I'm tired of the constant pain and limited use of the shoulder. I just thought I needed to let everyone know I haven't abandoned you on purpose but I'm just feeling kind of bad and disabilities are getting to a point where it's getting difficult to deal with them. I wish everyone good health and please take care. I hope to get to a place where I can post and talk to you more often. I'm the one that now needs to remember that together we are stronger. Please remember it for me!
My disabilities are weighing me down lik... - My MSAA Community
My MSAA Community
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