I did it

[jkdavid99]

I did my first Tysabri infusions this afternoon. I only did it because you all made me feel more comfortable doing it. So thank you. So far I do not feel any different s far as side effects.

How long did it take those of you on Tysabri to notice a difference? Did you feel better, more energy, tired?

I feel a weight has been lifted off me as long as I don't start to feel any side effects.

Thanks and hoping this will help me.

Jenny

[jimeka]

jkdavid99 a feeling of relief, that will help in itself. I am glad it went well. What kind of ms do you have and why did your doctor choose tysabrii? HVe a great Christmas, blessings Jimeka 🎄 🎅🏻 ⛄️

[jkdavid99 in reply to jimeka]

I have primary progressive. I had a new lesion after being on AuBaggio for 1 year and he thinks tysabri will work well for me. I hope so. I hate to start taking new meds so I don't want to start again. Hope I stay jc negative

[jimeka in reply to jkdavid99]

jkdavid99 do you mind if I ask how old you are? As I have PPMS and I am 61, thank you blessings Jimeka ☃️ 🎅🏻 🎄

[jkdavid99]

I am 46, diagnosed 15 years ago

[jimeka in reply to jkdavid99]

jkdavid99 well I hope and pray that it works for you and that it gives you a better quality of life. Thank you, blessings Jimeka 🎄

[Juleigh21]

jkdavid99 I am so glad you have this behind you!! A very wise neurologist told me that once Jcnegative on Tysabri you "normally" stay that way. I honestly don't feel that after 24 doses I've had any negative side effects other than my immune system is more likely to pick up viruses/infections now. Honestly though, I will tell you that I didn't notice a difference in feeling better till about dose 7. I hope your progression stops and you feel a little better soon!

[Iona60]

jkdavid99 I recently read that if you are JC- then the risk associated with Tysabri is minimal and comparable to Copaxone. I hope this will work for you.

[Roxy444]

Hi Jenny!

I have taken tysabri in the past for probably 5-7 years. I was found to be JC + (the first few years I was on tysabri, they didn’t do the blood tests for JC). I now have taken lemtrada, 2 years.

I remember the first 3-4 infusions, I felt the same. Then I began noticing I had a little more energy and looked forward to my next month’s infusion. It worked great for several years but the last two years I was on it, I was not feeling the energy increase any longer.

I will say that there is no doubt that it halted relapses for several years. I wish you the best and pray it improves your condition! 🙏🏼😊

[Bella326]

Hello all! Im fairly new to the game my journey started in march of 2016 just before my 30th birthday, i wasnt diagnosed until September of 2016 & my first treatment was copaxone which was a nightmare for me I felt the worst depression & just all around miserable so needless to say when my mri came back with new lesions & my dr wanted to change my meds i was thrilled. I just went for my 10 dose of Tysabri & i must say i feel good. It did take a few months before I noticed a difference in cognition & energy. I havent had any side effects or infusion reaction except once in a while ill feel extremely weak or fatigued after an infusion but it doest happen every time. Good luck!

[jkdavid99]

Thanks all for your feel good stories. Makes me a little excited to start to feel better.

Bella 326. I was also diagnosed at 30 but that was 15 years ago. This vision issue is my biggest relapse ever. Good luck to you.