Anyone Else Feeling Like Me?: Hi Community... - My MSAA Community

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Anyone Else Feeling Like Me?

stepsforNeeC profile image
31 Replies

Hi Community Fam, Philly can’t seem to stay stable with the sunshine! I thought I was living in a tropical rain forest for almost two weeks!! Feeling so tired and “wiped out” Neuro app, is the 24th of this month; can’t wait! I actually want a MRI to make sure I’m stable and nothing new since a year ago. Menopause doesn’t help either, I’m hot - then cold!! This too shall pass 🙏 Hubby is planning a nice Mother’s Day treat weekend, so gotta start to feel more energized! Strange thing, I take the recommended units of Vitamin D, eating healthy; what else can we do??? Yup 🙏always the best medicine. Blessings and love to everyone. NeeC

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31 Replies
CatsandCars profile image
CatsandCars

Sorry to hear that you're struggling. I hope you feel better soon, StepsforNeece! 😊

stepsforNeeC profile image
stepsforNeeC in reply to CatsandCars

Thank you so 🙏❤️

lbenmaor profile image
lbenmaor

I hope you feel better soon.🌺

Leslie

Helpmeup profile image
Helpmeup

Hang in there. M.S. and menopause are a tricky combination! Listen to your body, if you're feeling wiped out, rest and wait. And look forward to your Mother's Day outing! 🤗

stepsforNeeC profile image
stepsforNeeC in reply to Helpmeup

Thank you friend 😊

stepsforNeeC profile image
stepsforNeeC in reply to stepsforNeeC

Thank you

falalalala profile image
falalalala

Sorry you're going through that.

I've come close to melting a few thousand times. I use a small table fan to help at home. Everywhere else is misery.

I once saw these plastic hot flash necklaces with huge water filled beads that looked like something straight out of The Flintstones.

That's an option for formal occasions....on other planets, where no one can see these monstrosities.😅

stepsforNeeC profile image
stepsforNeeC in reply to falalalala

Wow, that sounds amazing! Almost like what we use during the summer from Shared Solutions.

falalalala profile image
falalalala in reply to stepsforNeeC

Idk how well it works. I have the scarves that you wet down.

stepsforNeeC profile image
stepsforNeeC in reply to falalalala

Okay, going to look into it. Thanks 😊

falalalala profile image
falalalala in reply to stepsforNeeC

You're welcome

Xvettech profile image
Xvettech

I’m in South Jersey! Neighbor 🙂. I too am feeling blah because the weather has gotten me down and achy. I too am in the menopause stage of life. No this isn’t fun and soon it will be too hot out again. lol. I hope you get to enjoy the few nice days we get 🙂

ahrogers profile image
ahrogers

If the heat has caused you to exercise less this could cause increased fatigue. I hope you get more energy soon! Mine seems to fluctuate a lot, could be menopause related for me too.

Robsmom profile image
Robsmom

Hello, I hope Philly weather gets better. I moved to Atlanta from Philly ten years ago. I'm coming up on Mother's Day to meet my daughter. She's coming over from the UK. As for menopause, I wasn't diagnosed until after going through menopause so I don't know what effects it has.

Hope you feel better.

stepsforNeeC profile image
stepsforNeeC in reply to Robsmom

Oh wow!!! I love ❤️ the ATL! Enjoy your time with your daughter!

bxrmom profile image
bxrmom

Hope you feel better soon. I am currently in early menopause or 'perimenopause' and every once in awhile the hot flashes can be bad. I have a cooling blanket that I use on my bed with the fan on high and the window open when its cool outside. I have a fan on my desk that I can turn on when needed.

About 4 or 5 months ago I started taking One A Day women's menopause vitamins and they may be helping to keep the hot flashes 'in check' for the most part.

Keep us updated on how you are doing.

stepsforNeeC profile image
stepsforNeeC in reply to bxrmom

Sounds like a good plan ❤️ Thank you

Sunandrainbows profile image
Sunandrainbows

Hello, and hoping you are doing well. I suffer from extreme exhaustion - sadly, I find this to be the worse part of MS... My neurologist prescribes me Modafinil. It helps a lot with staying awake, and even helps a bit with brain fog. Maybe it can help you. Love, light, & peace.

Elizt3 profile image
Elizt3

please hang in there. Sounds like we are in somewhat similar situations. I am west of Phillie in Central PA and also felt the effects of the recent warm weather. I'm also menopausal and that doesn't help the attempts to deal with temp changes. I try to exercise inside at a local gym 4-5 times per week ("try", is the word I used). Enjoy your Mother's day weekend!

stepsforNeeC profile image
stepsforNeeC in reply to Elizt3

Thank you my friend 🌸❤️💐

KipAngCan profile image
KipAngCan

Hi!! I’m from Berks County so I know the weather pain. I’m also going through the hot/cold part of menopause. I only get heat flashes in the evening and only while I’m at home. Weird. I already slept with an ice pack but now it’s necessary!! I’m not even thinking about Mother’s Day because the following week I have a son leaving for USAF basic training and a son graduating from college. Five days apart!! I hope I can keep up!! I hope you are able to enjoy your weekend!! MS definitely isn’t for the faint hearted!!

stepsforNeeC profile image
stepsforNeeC in reply to KipAngCan

No it’s not! I was just in your area 😊 Hubby and I went to the Berks Jazz Festival to see Incognito at the Doubletree! We usually go every year 🎶

stepsforNeeC profile image
stepsforNeeC in reply to KipAngCan

What wonderful accomplishments your sons have made!!!!! Go you and celebrate you a little bit!!!! Behind every focused young adult is a dedicated parent(s). 🎉🫢❤️

Irishgirl76 profile image
Irishgirl76

HI Philly girl! I was meant to see your post. I grew up in Philadelphia and miss it very much. In Florida now I am trying to decide if weather and practical to return to my roots. My siblings are here and nj but cannot support me at this time. I love them but I am sad that our lives grow apart. I was born and raised and started my symptoms in 2002 w/ Thomas Jefferson my first surgery/ nothing about MS. I can’t go back and change but move forward in FAITH. Where do you live? Lots of friends I stay in touch. Happy Mother’s Day and thank you 🙏 for your support.

Tazmanian profile image
Tazmanian

Here in North Jersey the weather is the same enjoy it while you can

stepsforNeeC profile image
stepsforNeeC in reply to Tazmanian

Close to UPenn and Drexel!!! I see all of my doctors at Thomas Jefferson University Hospital except for my Neurologist; he’s at Riddle! I been with him for 16 years and he was the only doctor who looked at my “films” and agreed that I had MS!!! Several other so called “Super doc’s” wanted to wait have me run back and forth??? Meanwhile I was sick as a dog 🥲. Philly is wonderful for the Arts and Restaurants, Museums, but right now we have out of control millennials who don’t give a darn about human life surging the gun violence to devastating numbers on a daily basis! Our parents kept us in check with spiritual guidance, structure and knowing your friends! Hubby and I looking more peaceful areas for mind, body and soul 🙏. Blessings my friend

Tazmanian profile image
Tazmanian in reply to stepsforNeeC

We're only about 25 minutes from NYC I guess we're in the same place just a different city

stepsforNeeC profile image
stepsforNeeC in reply to Tazmanian

Tanzanian, my phone is not cooperating my apologies for the long text

Tazmanian profile image
Tazmanian in reply to stepsforNeeC

Its okay

Kenu profile image
Kenu

Hope you get feeling better soon 🙏 Sounds like you are having Idaho weather 🤪🤣🥰

stepsforNeeC profile image
stepsforNeeC in reply to Kenu

Yes.., Thank you 😊

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