long wait!

[msjem]

So the first appointment my neuro has available is August 10. That is the first time I can get in to see him to discuss ocrevus and begin whatever needs to be done before infusion. Stinks I have to wait sooooo long to even get that done!! Guess i'l be sticking with Tecfidera for longer than I had hoped.

[Iona60]

msjem So sorry you have to wait so long. It's just crazy how long the waits are to see some neuros.

[greaterexp]

I'm sorry about the wait, but hope it works well for you once you can begin.

[Raingrrl]

msjem ...wow! that is a really long wait! Can they put you on a list so if someone cancels their appointment you could get in sooner??

[ddeadred]

Be thankful you have a current and don't fret the wait... Maybe it is karma... It's a new treatment and maybe some bugz need to be worked out before you begin... Waiting is difficult but until August is not so bad!!! Way back in 1994 I waited for 6 months in a "lottery" to receive BetaSeron. Be grateful that so many options are now available... Pray that the song hold true, "The waiting is the hardest part!"

[msjem in reply to ddeadred]

That occurred to me,,,and with the quote from my favorite artist, the all knowing tom petty, it just might be karma!

[Jesmcd2 CommunityAmbassador]

Hi msjem I do apologise for not saying hello sooner.😞 Welcome though to the MSAA Community ☺ As you can see we have some amazing, Helpful, considerate but most of All Supportive!☺

I'm so to hear you have to wait so long. Is this a problem that you usually run into? I can give you resources if you feel the need to change Neuros.☺

Just let me know! Welcome again!

~Helpful Hint~ If put an @ in front of person of who your addressing, they will be notified. IE @ jesmcd2 *With No Spaces*

Jes 🌠

[msjem in reply to Jesmcd2]

Jesmcd2 d2 I do have to book 6 months our for a normal appointment with this dr. I think he is probably getting bombarded right now because of the new drug. I like him but would like to get going on this drug sooner rather than later. What sort of resources are you referring to?

[Jesmcd2 CommunityAmbassador in reply to msjem]

msjem get ahold of mymsaa.org they will be7 ext.7 happy to give you names of great Neurologists in your area!☺

800 532-7667 ext. 154

Let us know how it works out for you! Personally, l have mine at an MS Clinic at a university. The always seem to have top notch care!😁

Jes🌠

[cnichols]

I lucked out had my appointment scheduled for yesterday, approval of Ocrevus came before my appointment. Paperwork has begun hoping to start 1st week of June when my next Rituxan dose will be do.

[msjem in reply to cnichols]

That's great! Let us know the difference between the two if you can notice any!

[cnichols in reply to msjem]

I am excited, Rituxan was great for me, neurologist said this will be even better!

[Shelly36]

Hello msjem! I finally got to see my neuro yesterday and the first thing she brought up was the ocrevus. I had to do blood work first to make sure I don't have hepatitis and to check for jcv. I filled out the paperwork for it and now it's a waiting game to see if my insurance will cover it. She told me that I have to wait 5 weeks after my last Tysabri infusion, which was 2 days ago. And I need another MRI done. Grrrr! I hate waiting! Once I get everything approved, I will let you all know