Tysabri. Long wait thanks for the inform... - My MSAA Community

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Tysabri. Long wait thanks for the information

Pbargal profile image
Pbargal
β€’6 Replies

I just finished my first infusion of Tysabri two months after my neurologist ordered it...better late than never. Insurance they know better than your doctor. Hopefully it will do the job...God willing. πŸ™πŸ» So far no side affects πŸ‘πŸ»

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Pbargal
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jimeka profile image
jimeka

Hopefully you won't get any side affects and the drug does its job and gives you a better quality of life. Merry Christmas, Jimeka

Pbargal profile image
Pbargalβ€’ in reply tojimeka

That's my prayer Jimena. Merry Christmas πŸŽ„ God bless

Juleigh21 profile image
Juleigh21

I've had 11 doses and am doing better than I did on my 2 previous DMTs. The doc was going to put me on ampyra for my unsteady walking. The longer I'm on Tysabri, the better I walk. All my symptoms are much more manageable and I need less and less Gabapentin and muscle relaxers. Give the med about 6 months and by then you should see a real difference. Good luck!

Pbargal profile image
Pbargalβ€’ in reply toJuleigh21

Thanks Juleigh21 for the encouragement I'm looking forward to feeling better. Nerve pain and fatigue are my biggest issues and I would love for them to lessen even a little. My hopes are hi. Merry Christmas 🎁

Ebrod profile image
Ebrod

I was on tysabri. I miss it, IM in a relapse at the time but doing ok. I went from JC neg to JC pos+ but will not risk tml to be back on it!! It really was a great DMT, i felt almost normal (whatever 'normal' is)!! Looking at Gilenya or other for the interim (lemtrada?) tysabri is worth the try!! πŸ˜€

Pbargal profile image
Pbargal

Sorry to hear your in a relapse Ebrod. I pray your on the other side soon. God willing I will stay JC negative and it will work for me the way it worked for you.

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