Alot of us have appts this month and l can't deal track. ( And Tutu bailed on the spreadsheet) 😁 πŸ˜„ So who has appointments, and for what this month?

I see my Neuro Thu.πŸ˜• And forgot what l was gonna ask/tell him. win😞


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  • Hope all have good outcomes at their appts.

    So is March appt. mos.? Mine is on the 27th

  • Alot of ppl were mentioning it erash ☺ so l figured l would toss it out there!πŸ˜…πŸŒ 

  • I've put it on my calendar erash. Praying all goes well.

  • I had my annual neuro appointment!

  • And you had great news if l remember correctly StacyHayward ?😁 When do you see your old/new Neuro? Try saying that 5 times fast. Yikes!!!


  • Probably not for a year. But I'm ok with that. I usually am stable enough that I only go in once a year.

  • My neuro appt is next week 3/14. Had labwork done this week. Hoping the lymphocyte numbers are normal so I can stay on the Gileyna.

    As a funny, my husband read your post. I told him you were one of the people that keeps this support group going. He said. "What a committment, or you ought to be committed. Not sure which."

    Thanks for keeping up with us Jesmcd2 .

  • Iona60 l hope your numbers are normal also! Very good luck at your appointment!!☺ And tell you hubby, that no one said keeping up was part of the job??πŸ˜• And committed sounds about right as long as l get the blue crayons.😡 πŸ˜…


  • Ah Jesmcd2, you do make us laugh πŸ˜‚ Thanks!!

  • On my calendar Iona60. Praying your bloodwork is ok.

  • @iona how did your blood work go? I'm slacking this wk. Sry! 😁🌠

  • Blood work OK enough to stay on Gilenya. Neuro appt went well. He is referring me to a new neuro opthamologist in town and in my network.

  • Always great to hear good news Iona60 β˜ΊπŸ’•πŸŒ 

  • Hope all goes well tomorrow and I agree with Iona60, you do a great job, but where's your helper Fancy1959? Also it's quiet on the David front, also agapepilgrim, agate, Suki, Sleek, Gaslight just to name a few, where as everyone gone? Just to know they are all greatly missed, blessings Jimeka

  • I have especially been wondering about GasLight , am missing his keen sense of humor.

  • You are so right jimeka ! We are missing a few! I know a few of them ie Fancy1959 agapepilgrim and l think not sure though, RoyceNewton are busy with the MS Walk. I'm still trying to come up with a team name! Help!


  • Jesmcd2, it's Fancy1959. If you like the name I am going to start using next year, I would be honored to share it with your New York team. Next year we are going to be the MS M&M'S, short for the MS Miracle Makers! I can just see a giant M & M on our t-shirts! If you aren't crazy about it, good luck coming up with your team name. It's a lot harder than you'd think it would be!

  • I like it Fancy1959, nice to see you are giving it your all. Keep walking, blessings Jimeka

  • I like it Fancy1959 !! I'm not going to have a team. But l think , ldk, maybe you can tell me? I know l put my name in, but do they give you an email to send? So they can donate under my name? I'm so confused!!!!

  • Jesmcd2, it's Fancy1959. It is a lot easier than you would think, so don't fret. All you need to do is find out who is in charge of your local National MS Society Office. Then ask for your Logistics Coordinator . That person will be be able to assist you in setting up your page for you or your team. In Louisville KY. our NationalLogistics Coordinator is Maci and her phone # is 502-526-4031. Perhaps she can assist you in finding the Natioal Logistics Coordinator in your region.

    Get on my page. Find you walk-type in Kentucky KY. Then search team names and type in MS Fighters in there probably 8 to 10 of those. Scroll down until you see MS Fighters with LindaO'Nan under the name. And get on my team page and my personal page and just snoop around and see what I've got! I hope that helps! Let me know if it doesn't.

  • Depending on where they are in the country, they are either shoveling snow in the northeastern states, or out enjoying spring weather here in California. Right now in California, you can snow ski in the Sierras or ride your bikes(motor or pedal) in the valleys, or you are working. Almost 80 degrees where we are.

  • I have an appointment tomorrow too, Jesmcd2. I'll be thinking of you while I'm at mine. Enjoy lunch with your grandson. πŸ˜„

  • Tutu hope all goe well πŸ‘

  • Tutu Hope all goes well! Let us know!


  • Thanks, friends!

  • Jesmcd2 he all goes well for your appt too!

  • My appointment has been put off for 2 reason's. 1st, and of course most important it's picture dayπŸ˜πŸ˜… and 2nd my daughter has either bronchitis or a sinus infection. She started antibiotics yesterday, told her to stay the he** away from me!!!πŸ˜…πŸ˜…πŸ˜…πŸ˜… So its now on the 23rd. πŸ˜…πŸ’•


  • Would have to be a major natural disaster πŸŒͺ for me to cancel a neuro appt. my neuro is booked a year out.

    Hope your daughter feels better and doesn't share Jesmcd2

  • Lol erash she can share up there all she wants to! Bubs is already on antibiotics πŸ˜…πŸ˜…πŸ’•

  • Ok, I'll make the change on my calendar. And the spreadsheet? Goodness! I can barely keep my calendar straight! 😦

  • My appointment on the 27th has been postponed until April 10th. Still better than the original plan of being seen in June/July.

    I hope everyone elses appointments go well and you get the answers/results you're looking for.

  • I hope yours doesn't get delayed. You're on my calendar.

  • That's not to far away HeidiK ☺ l hope it all goes well for you!!


    ps. I got your message, l just have to answer you back still.😁 ~hugs~

  • Good morning, friends.

    I had to focus on a project for the past few days, but it's done now. πŸŽ†πŸŽ‰πŸŽ‡πŸŽŠ

    Appointments this month ... hmmm. Eye doctor on Saturday. It's been 2 years but I'm not expecting any changes. I'm on Gilenya so my neuro wants to make sure there's no macular edema going on and I want to make sure I'm not developing macular degeneration.

    Wednesday, the annual boobie smash and labs necessary before i get my semi-annual osteoporosis injection.

    I don't think I see the neurologist again until May.

    Eleyne πŸ˜‚

  • Busy month for you Eleyne92. Hope all goes well at all of your appts. My calendar is filling up!

  • Hope your keeping up Tutu cause l knew there were alot this month!πŸ˜„πŸ˜…πŸ˜΅πŸ’•πŸŒ 

  • Eleyne92 how did annual boogie smashing go? I put mine off for a long as l could, but my PCP called me on itπŸ˜‘πŸ˜…πŸ˜… So finally had it done.☺ Along with the blood work he wanted.

    Sometimes I think he's just "Looking" for something to be wrong with me.πŸ˜‘

  • Jesmcd2, how thoughtful you are to try to keep track! I don't think mine is until April, but I'm praying for good news for everyone.

  • Thank you greaterexp shhh secret.... No way can l really keep up with you all!! πŸ˜…πŸ˜… But l try my best, it's good for my memory!☺🌠

  • I'm slow on catching up here. I have 5 hr appt. at MS Clinic at UCSF on March 21 for nerve conduction tests of the optical nerves and cervical, thoracic spine. Some other tests, but my fog prevents me from their names. April 11, will return to UCSF for MRI's without/with contrast dye. In the tube approx 21/2 hrs. so I can dream of Maui. Then April 18, MS Clinic to get all the results and maybe a definite DX. Long days on all of these appts. We get up approx. 3am, leave by 3:30 to drive to SF ahead of commute traffic and try to get out of city before afternoon Commute.

  • CalfeeChick l wish you tons of Luck! I hate the nerve conduction tests! The last time l had it done, it took 3 people to hold me down 😞😒 and at my last MRI l broke it. ~sigh~ oh well πŸ˜…πŸ˜…


  • Hold you down??!! Oh no, what have I got myself into?! I had nerve conduction test in my legs when all of this first started and almost kicked the nice lady then. This will be at UCSF and their technician. The MRI I can relax in the tube. I'll let you know how it goes.

  • Oops sorry CalfeeChick I t could be just me. I live in sever pain all the time and have learned to deal with it. But NEW pain and l do not get along at all. πŸ˜‘πŸ˜…πŸŒ 

  • CalfeeChick l wish you tons of Luck! I hate the nerve conduction tests! The last time l had it done, it took 3 people to hold me down 😞😒 and at my last MRI l broke it. ~sigh~ oh well πŸ˜…πŸ˜…


  • I usually remember what I want to say when I leave...

  • Russso that's always the way it goes! Do you keep a list of new symptoms and questions to take with you?


  • I've been trying make up a list of questions for April 18 appt when I get all the results. I'm trying to write in a diary every couple of days for reference, but it's even hard to remember to write in it.

  • I gave up writing in a diary/journal eons ago. I just have a notebook with butterflies on it that l not down notes in.πŸ˜… But l have 2pgs. In the middle folded over, easy to get to, JUST for my Neurologists. Date and what happened. And questions. Simple and easy. And it sits right on the coffee table. You just have to find what works for you CalfeeChick 😁 And don't forget to put your most important questions at the top!


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