Question of the Month, Dr. Appointments!

[CalfeeChick]

I'm sorry for just getting to this. "March has come in like a Lion" in more ways than one. So here's the question, who has already had an appointment this month and who has appointments coming up this month. If you feel like sharing, please tell us when and how it goes. I could fill up quite a few days with my appts this month, but mine are annual check-up appts. Not MS related.

[RoseySawyer]

I had my Infusion last Monday. It went great.

[CalfeeChick CommunityAmbassador in reply to RoseySawyer]

Glad it went well, what DMT are you getting?

[RoseySawyer in reply to CalfeeChick]

I take Rituxan.

[CalfeeChick CommunityAmbassador in reply to RoseySawyer]

That's the one I'm thinking of asking my MS doc at appointment next month, we'll what happens.

[Iona60]

Thanks for posting this great list. My neurologist said last week that his hope is that the ocrevus keeps me from turning to spms. Any positive results probably won't happen for six months. I'm the first to say that I'm sleeping poorly.

[CalfeeChick CommunityAmbassador in reply to Iona60]

I hope the good rest comes soon. Perhaps a little OTC help from Melatonin or "midnight" might give you some good rest.

[Iona60 in reply to CalfeeChick]

Yes. I just started taking the melatonin. It is helping.

[janetb1968]

I've got neurophysio tomorrow and Tysabri on Thursday this week xxx

[CalfeeChick CommunityAmbassador in reply to janetb1968]

Busy week, Let us know how it goes.

[janetb1968 in reply to CalfeeChick]

Hi Lynn thanks for the reply 😊 im a bit nervous about the Tysabri tomorrow 😕😕😕 going to bed soon up early in the morning got to be at Day Treatment Centre at Royal Preston Hospital for 08.30am xxxxx got physio again Friday morning

Janet B UK take care ❤🍫❤🍫

[bxrmom]

I posted about my appointment today

Jessie

[MS_Indestructible]

Wow, where do I start. This is a very busy month for me. I've had two so far and about 10 more not counting all the trips to the pharmacy to refill one or another of the 18+ prescriptions that have to be refilled.

I have a big MRI scheduled, my Rituxan infusion two days later. I get to my hearing doctor twice since I lost complete hearing about two months ago. So them's are the biggies. My Psychiatrist, Psychologist, Neurologist and primary. Did I say this is a busy month or what. I'm tired just thinking about it. I how others fair better.

~terry

[CalfeeChick CommunityAmbassador in reply to MS_Indestructible]

Ms-Indestructible Hope it all goes very well, Terry. You will get through it! YOU are tough as nails!

[MS_Indestructible in reply to CalfeeChick]

thank you for the best of wishes. Just a very busy month. Somehow they all hit at once. ~terry

[janetb1968 in reply to MS_Indestructible]

Hope u get through your very busy month Ms-Indestructible xxxxx

[MS_Indestructible in reply to janetb1968]

ha ha ha, thank you, I have a friend who will be visiting a friend out in the Inland Empire. She will be down from Port Townsend, WA. for a week so I'll be going out for a few days to visit. April is my month to rest. Be good and keep the monster at bay. ~terry

[Tracy79 in reply to MS_Indestructible]

Can you refill by mail? I do and am glad that I can. Be well 🙃

[MS_Indestructible in reply to Tracy79]

thanks for asking, right now I'm not able to do refill by mail but looking into it a bit more. Lucky the pharmacy is not too far away. ~terry

[Kenu]

I go into my PCP this Wednesday to renew my so called normal pills for six months. Thursday to pain specialist for post-op instructions for replacement of pain pump 👍🤗. Next week to Oncologist checkup for throat cancer and replacement of feeding tube 👍😉. The end of month Neurologist for renewal of Aubagio 👍😁. The fun we have 😜🤣😂😁🐾🐩🙏 Ken

[CalfeeChick CommunityAmbassador in reply to Kenu]

Life is Grand, then we open our eyes. Hang in there Buddy and never give up. Do you get Ice cream with the tube?

[MS_Indestructible in reply to CalfeeChick]

good question CalfeeChick , I think Kenu has a more challenging month than I do. Let us know how things go Ken. Seems like March is a month of all months for some of us. ~terry

[Amore55]

I have pain dr appt on the 14th. Haven’t seen my neuro for awhile, seeing her on the 19th. Seeing a surgeon on the 28th, unless they have a spot open sooner, which I am hoping. Then we have to schedule the surgery from there. Will be in hospital for three days I believe. I want to take my four fur babies with me, but they said no! 🐕🐶 One of the biggies is that I haven’t been on any dmt’s for awhile now, and it appears Ocrevus is my only option, and I am not real keen on taking it. Need a script for pt and occupational therapy. Used to be so strong, now so weak,must fight to rebuild what I can. Hope all of you are doing well. Love to all, Kelly xx

[Fancy1959 in reply to Amore55]

Kelly,it's Fancy1959. You can't give up! Fight! Fight! Fight! I understand first hand how simple it would seem to just give up and have all the pain, the disabilities, the fear and uncertainties simply go away. But we can't. It's hard to realize that we are still very important to so many people. I understand when we feel so worthless and inadequate because we're not the women we used to be it's hard to remember that fact. Our spouses, our children, our grandchildren, our friends, and extended families looks up to us and unknowingly we have become role models for them. They admire us for our determination, our will to survive, and the sheer grit we show in fighting the monster that is trying to destroy us.

And far as your concerns regarding ocrevus please go to the post I did about a week ago and look at all the responses to it. The name of it is let's do an ocrevus poll. It might fill in a lot of your concerns as you listen to everyone talking about what ocrevus has done for them. Most of us have been on it too short a time to see any really good results, yet. You can also get a feel for how people react to the infusions, Etc. Kelly I plan to update this poll twice a year so we can follow each other's results and compare them on the therapy. As I said before please keep in touch. I miss you. Let us know if you get on ocrevus and follow the poll along. Please give us any input you have regarding your therapy sessions and therapy itself. Thanks a million for being my role model and dearest friend and MS sister! Fancy. 💕😊🤗

[Amore55 in reply to Fancy1959]

Fancy1959 thanks for your great words of encouragement. That poll is a great idea and a fabulous guide for all of us to know how Ocrevus is working for others, what good news! I miss you too. I will never forget how at a dark time you had me private message you everyday until I dug out. You truly saved my life. How can one ever thank someone for showing that kind of love? I am crying just remembering it. This forum is really rather magical. And you are a great part of that magic! I miss you too, will try to write more often, as you said, my dear, cherished friend and sister. Love, Kelly xx

[Fancy1959 in reply to Amore55]

Kelly, I am thrilled at the news that we will be in contact more often. It also makes me feel I can still make a positive difference in people's lives and be useful instead of disabled.😊💕🤗

[MS_Indestructible in reply to Fancy1959]

Fancy1959 I like your posts, keep up your good work. you make more of a difference than you know. ~terry

[MS_Indestructible in reply to Amore55]

Amore55 COOL ! ! !

[MS_Indestructible in reply to Fancy1959]

Fancy1959 awesome post. If I remember Ocrevus and Rituxan are very similar. From my experience it takes at least a year to notice any changes. though I notices some very minor changes after my first full treatment. ~terry

[CalfeeChick CommunityAmbassador in reply to Fancy1959]

A poll on how each is doing would be awesome Fancy1959 Especially with this MS Month!

[MS_Indestructible in reply to Amore55]

Kelly, you might want to give a serious look at the Rituxan Therapy choice. I've been on it now for two years and it is working wonders for me. ~terry

[micheleinnaples]

First visit to new Neurologist this week based on a referral from Cleveland Clinic. Originally was diagnosed with Giant Cell Arteritis. Second opinion at Cleveland Clinic proved a wrong diagnosis. Leaning towards MS. Have an order for a brain MRI. I’m praying that this Doc will have answers!

[Kenu in reply to micheleinnaples]

Good luck 👍I hope things work out for you 🙏🐾🐩Ken

[CalfeeChick CommunityAmbassador in reply to micheleinnaples]

Hope it all goes well, please let us know how it goes.

[MS_Indestructible in reply to micheleinnaples]

I remember when I had to wait for answers. It took my doctors about 4 months to make my dx. There are a series of tests for MS to make a very positive dx of MS. My wishes are you have some other dx that can be cured. Keep us updated please ~terry

[Fancy1959]

CalfeeChick, it's Fancy1959. I have next week on Thursday my one year check in MRI to see if I've developed any new lesions or have active ones. After I do the MRI I'll be heading towards the doctors within a week 10 days. My next ocrevus infusion is coming up in about a month now. When I find out the exact day neurologist appointment I'll let you know. Thanks for posting this post. Great job!

[CalfeeChick CommunityAmbassador in reply to Fancy1959]

Thanks Fancy1959 Hope all goes well. I'm thinking of asking doc about Rituxan next month at my next Neuro appt.

[MS_Indestructible in reply to CalfeeChick]

CalfeeChick great, if you need anything I can help you with please let me know. I have been on Rituxan for about two years now. I was going to post my recent update from my latest visit from my neuro. I am finally stable. with SPMS and since 2006 I've had all sorts of progressions with the MS, and 3 different neuros. I am happy and looking forward to my next treatment on the 22nd. I think either ocrevus or rituxan would be good, though I am somewhat particular towards rituxan. Let us know. ~terry

[cheshcat]

My dance card is full of appointments this month. I have an esophagus study tomorrow morning to see why I'm not swallowing correctly. Paired with an ENT appointment on the 19th, so they can scope why my voice isn't working as well.

I see my neurologist on the 16th for my yearly exam and I'm hoping to get my MRIs scheduled for this month after that.

I see my primary on the 13th.

Here's to never ending doctors appointments! I wish I never saw any of them every again but I guess that isn't happening, so trying acceptance out for a change.

Thanks for the thread CalfeeChick !

[Kenu]

Made it to PCP and got my normal meds renewed along with antibiotics for sinus infection along with steroids to break it up 👍 Hope this works so it does not mess with my pump replacement 🤷🏼‍♂️ Also doctor put in for feeding tube replacement and have to hope insurance ok’s🙏👍Will keep you updated 👌🐾🐩 Ken

[Kenu]

Yes👍 The insurance approved my feeding tube and setup for Wednesday morning 9:30am🤗 Also went to my pain specialist today and I am still on for replacement pain pump on Friday the 23rd 🙏 Should be over my cold by then 🙏👍😜🐾🐩Ken

[Qt314grl]

It’s crazy but this is my first month in a long time without a dr appt. even my pain dr is letting me go every 2 months now so I don’t even have to go there!!

I’m just hanging out waiting for my next MRI in May.

[CalfeeChick CommunityAmbassador]

I had my own response all filled out and somehow erased it. I had 5 appointments, blood taken, gastroenterologist, (Linzess works well) Mammogram, Skin cancer in hand removed, GP follow up. Hubby had 4 appts at VA 90 miles away, had very serious eye surgery and is doing well. I'm still tired and more tired just thinking about it.