As many of you know, I went numb on June 28 ,2016. The 1st neuro just kind of "wrote me off" saying he didn't know what I was so upset about, "that I am 68 and have had a long life." I got referred to UCSF MS Clinic (love them.) After many tests, MRI of Brain, cervical and thoracic spine, spinal tap, lots of blood tests, I got the results yesterday. Forgive me if I leave anything out and come back in comments. So much to absorb.
I have MS, 1 size able lesion on my thoracic spine at T5-6 which Dr. feels is causing the majority of my symptoms. There are white spots on the brain which he feels are not detailed enough. He says, "yes, you have MS, but not enough to start disease modifying drugs." He wants additional testing for optical nerves and nerve conduction in my spine. Waiting for return call to schedule that appt. I go back in April after I've had another high intensity MRI to tell if there are any differences since Oct. 13, 2016 MRI. So I guess it's good news that it's not any worse than what it is, but I'm disappointed because I had hoped to start some treatment to get any kind of remission. I was able to sign up for what they call MY Chart and read the reports from MRI and spinal tap and bloodwork. I have 20 or more white spots in my brain. Spinal tap was clear had no conclusive results. All other tests, were within normal ranges. So I'm sitting here wondering if I asked all the appropriate questions. He offered drugs to treat my symptoms and fatigue, but they all have so many side affects, I chose not to accept those. So now we start the waiting game for more tests, affects of MS and feeling like I'm not making progress. I have always been pro-active with my health and whatever was not well, fixed it and moved forward.. Now I'm feeling like I'm just circling the situation. Yes, definitely bummed out.. I wanted to get back on my bike in the new year.. Lynn