Today's first MS Neuro visit

[GerriG]

Well, it could have been worse? Yes, clear signs of MS, with symptoms dating back as far as 15 yrs ago. Some blind spots in my left eye. Also, some unexplained white matter that may or may not be vascular disease and damage in frontal area. So, next, spinal MRI, then a lumbar. 4 days of almost non stop tremors, wrapped in a blanket of anxiety and mood swings, exhausting to say the least. The only thing more stressful is insurance about to go away and SSI is the rock in the road. Someone tell me there's a little more hope than I'm seeing right now. I'm not giving up by any means, I'm just too tired to see the light this moment.

[Bamfan1442]

Hi @GerriG and I know how you feel, although I haven't been diagnosed yet. I am in the process of getting SSI/SSDI and my Medicaid insurance in order. Still waiting for approval on my Primary Care Provider that I chose so I can make an appointment and find out if I have MS or whatever this crap is. I just hope I don't need a Lumbar Puncture or Spinal Tap I'm scared to death of that! I've had symptoms dating back to late 80's but was told it was chronic fatigue syndrome and fibromyalgia. Not so sure about that now, since you don't get tingling spasms with numbness in your arms, hands, legs, and feet with that diagnosis! Sending good thoughts your way and hoping you find relief and comfort from your symptoms. Peace and strength be with you now and in the days ahead.

[Educator22 in reply to Bamfan1442]

Was diagnosed on Halloween, 1999. Have had every test, no reason to fear, just follow doctor's orders. The medication helps, may take a few to find your right one, but just keep trying. Patience is needed when dealing with insurances but things work out, never give up the fight. Might take awhile, but welll worth the fight. Many of the pharmaceutical companies have programs that assist with getting Meds, some for a little copay or no cost. Do not give up or in to this dastardly disease. Have faith that there are resources, support to help you in your journey.

[erash]

GerriG

Hope the road gets smoother for you. Hang in there and know that we are all here to support you!🌈

[greaterexp]

GerriG , there are many here who really understand the deluge of things to deal with, fears and questions, and all the emotions. I hate that any of us have to feel this way at all, but know that you aren't alone. Though we feel what we feel, you're obviously wise enough not to let yourself stay down.

Whenever I feel a little overwhelmed (isn't that an oxymoron?), I remember advice from my sister. Q: How do you eat an elephant? A: One bite at a time. It helps me to try to think of only the next thing to do, rather than the long list. And I pray a lot!

I'll pray that your burden is only as heavy as the next thing to be done and for a sense of both peace and determination. There are low spots in our roller coasters, but a higher point is coming with a much better view.

[jimeka in reply to greaterexp]

Could not have said it any better Erin, God bless, looking forward to the view, Jimeka 🦋 🌈 🙏

[WAshingtongirl in reply to jimeka]

I second that, jimeka . Excellent reply, greaterexp .

And GerriG , it sounds like your doctor is moving ahead and getting things done. That in itself is a blessing. Believe me, it is. I'm praying for you and all you have on your mind and heart. 💕

[Fee09]

GerriG things are shaky at first but it will get better. I went through and worse. I was in cycle of misdiagnosis for about 6 years. Having tremors, spasms, vertigo and fatigue with no real explanation. It took 4 years out of work to get SDI and my dx. You have a dx and it seems that your dr is on the case, so you should be getting what you need soon. Keep your head up and lnow this too will pass 🌈

[Iona60]

GerriG Saying a prayer for you. Sometimes you have to just take it one hour at a time.

[GerriG]

Thank you EVERYONE for the kind, hopeful words. Nice to be amongst others who really understand.