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My MSAA Community
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I'm a newbie!

I was diagnosed in May of 2015, at age 65, with primary progressive MS. Befor that I was seeing a neurologist for Essential Tremor and considering having deep brain stimulation surgery. I had the surgery in Nov. 2015 and it made an enormous improvement in my tremor, although my right hand and left leg still tremor some. AS for the MS, I have recently started some PT and Speech therapy to help with balance and swallowing/voice issues. I am waiting to see what the FDA (and my insurance co.) have to say about the possible med. for primary progressive that is being looked at. This is not what I imagined retirement being like,but I guess I am lucky that I am retired and have the time and some energy to deal with everything.

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What is the med you are looking at, hope you get it, I have PPMS so please keep us informed how you get on, hope when you get it, that it works for you, Cheers Jimeka


The new drug for PPMS and RRMS is Ocrevus (ocrelizumab). My neurologist wants me to consider the medication. However, B-cell depletion is not insignificant treatment. She wants to watch how others respond and how my MS is progressing. I am on the border of RRMS and SPMS. But for others, she stated they had no choice.

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Welcome to our My MSAA Community, bavery207 ! Thank you for sharing your MS journey so far, and we certainly want you to keep us posted on here.

- John, MSAA


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