difficulty walking

[weemaisie]

has anyone had pains in back of head

I have MSA C

I use zimmer in the house but wheelchair outside finding it really hard now as if my legs aren’t working and I’m dizzy, can’t even stand for a few minutes, I know I have low blood pressure especially standing and on a lot of blood pressure medication but do you think I would be better and safer using wheelchair all the time, just wondering if anyone out there has similar issues??

may

[Paul_and_Sue_Wood]

Hi May

This tends to be most MSA sufferers problems as mobility fails.

For your own safety use aids such as a wheelchair to get around.

My Sue was exactly the same and started with a Zimmer frame. She then had a small electric wheelchair to get around which she controlled. Eventually should couldn't use that as her ability to control her hands failed so I mover her around.

Something to consider is that a lot of sufferers find that a fall or illness causes a further change in MSA so limiting these potentials is for the good.

Adapt as you go on.

Paul and Sue

[weemaisie in reply to Paul_and_Sue_Wood]

Mobility

[weemaisie in reply to Paul_and_Sue_Wood]

thanks Paul, I think you’re right with using wheelchair because finding it very hard now even getting ready is a chore and using Zimmer is so hard now because when I stand up for only a few minutes I feel dizzy and exhausted due to blood pressure dropping I’m fine sitting and don’t want to end up in hospital as the last time I was in due to blackouts and falls I feel like I deteriorated so I’ll take your advice

May

[Paul_and_Sue_Wood in reply to weemaisie]

Hi May

If you haven't already reach out to MSA trust as they have lots of professional advice and tips to help you.

They are run in person and digital forums.

Paul

[weemaisie in reply to Paul_and_Sue_Wood]

MSATrust

[weemaisie in reply to weemaisie]

Yes Paul I am in touch with MSATrust thanks

[iPad4]

Hi May,

Fortunately I can still walk unaided however I do suffer constantly from pain in the back of my head.

You are the only person on this forum to describe feeling the pain in the ‘back of your head’ and I totally agree with you. In the past I would have described the pain as being in my neck.

I find the pain gets worse when I am under stress. I take 2mg of Diazepam when it gets really bad and it sends to help.

Regards

Michael

[PineEater]

weemaisie HiPlease note that protecting oneself from injury using all possible means is of paramount importance while walking. Have you discussed your low BP problem due to OH with your GP? Best wishes

[weemaisie in reply to PineEater]

Mobility

[weemaisie]

hi PineEater, thanks for replying yes discussed my blood pressure issues with OT and Doctor

I’m finding Zimmer too light for me, so hubby will just have to guide me about from now on in wheelchair as I tend to fall over with Zimmer and don’t want to end up in hospital again.

Best Wishes