Skin

[butlin]

Hi i Have msa I don't know whether this is a new symptom but my skin feels very itchy and alive to touch also have psoriasis which I've had for 50 years But never had Skin like this little spots Very itchy went see dermatologist last week he did not think it was psoriasis but going to put me back into the uv light chamber, I was wondering if anyone else has had this problem I do not take a lot of medication because I found it did Not help Msa ,only take sodium tablets For low Blood pressure , and ipinnia (ropinirole) Sorry about no punctuation I have to dictate to my computer which has A mind of it's own Kind regards stay safe

[FredaE]

Computers all have minds of their own. mine likes to wreck my spelling at the instant of tranmission

having MSA does not prevent you having anything else as well so we have to take care not to put down something which can be treated, as MSA

That even applies to high blood pressure . MSA has low BP but not at night when it can get too high.

Have you been in touch with the MSA nurse specialist for your area.? Find her through MSAT (the MSA Trust) in London. This sounds to me like the right person to ask

Take care FredaE

[butlin in reply to FredaE]

Hi thank you for your reply I already speak to Msa nurses but not about this problem at the moment as I don't know whether its to do with my temperature control as my Msa does affect that as well, I Feel cold But really I'm quite hot I thank you for your help Kind regards

[Keycode]

Hi, my mum suffered with very itchy skin too. I think it was more in the early stages. It used to keep her awake at night and drive her crazy.Not sure there was ever a reason for it but she did used to struggle with her temperature control and would often have night sweats. She used a lot of cetraben cream to keep her skin moisturised as it did tend to get dry and she took an antihistamine at bedtime. Might be worth chatting to your gp or community nurse see if they can suggest anything.

Hope it eases soon.

[Diane831]

My husband, and at least one other MSA patient I know, developed a skin condition with blisters called Bullous Pemphygoid. (An auto immune disease) It started as an itchy rash in odd places like the front of his lower thigh. It developed over a few weeks to widespread blisters. The chances are that you don’t have that but if you see blisters developing please get someone to rule it out as untreated it is very bad. Diane

[butlin in reply to Diane831]

Good morning thank you very much for your reply and your advice Regards Chris

[Andrashko]

My husband seems to have developed very dry skin, not sure if it's related to his MSA-C or just that it's dry here in Colorado. Only thing that helps him is Bag Balm. Not sure where you are or if you have this available, it is found at the drug store. It is in a green tin, and was recommended by one of our doctors that was also a farmer. I used it on a dog I had once, as her puppies were tearing up her belly feeding. The next day she was healed! If you an get your hand on this, it is amazing stuff. Very greasy, but if you put it on your legs (this is what we do for John) and then a pair of socks, leave them on for 24 hours, you'll see the amazing difference.

[butlin in reply to Andrashko]

thank you very much for your reply and your advice i live cornwall in the uk not so dry in this part of the world, Regards Chris

[Niknak74]

Hi Chris

Just backing up what FredaE said about not everything may be down to MSA. My husband has had itchy flaky skin now on his chin and around beard area for some time now. We had it checked out at the GP's and he said he's producing too much yeast so prescribed him Polytar a cold tar solution to wash the area when showering. It reduces the flakiness but returns as soon as he's not using the polytar. He didn't say this was linked to MSA.

His feet are very dry as well and permanently swollen so the GP gave him Aveeno cream to apply daily. The swollen feet we know is due to bladder blockages and definitely related to MSA.

Your GP, MSA nurse / consultant are probably your best bet to working out how to treat your skin effectively and if its related or not to this condition.

I wish you well with it and hope you gain some relief soon.

Nik

[bluenose100]

My wife had same problem she said it feels like spiders walking along her skin doctor could not explain why but tried a lot of creamsThe only cream what work was avenno

Doctors try to give you cheap creams insist

You want that cream on prescription

Good luck

[Rhyothemis]

I have problems with itch, hives and eczema due to mast cell issues (called 'histamine intolerance' or mast cell activation syndrome). My father had MSA, until recently I was having most of the same early symptoms even though it is not supposed to be hereditary. A lot improved when I started taking Mito Q and a few other supplements; I have switched to high doses of ubiquinol due to price increases and it seems to work just as well.

The best skin cream I have found for itch is Eucerin Roughness Relief. The ingredient list reads like a work-out supplement; some of the amino acids are the same as was found to inhibit mTOR in mast cells and help regulate their activity -

sciencedirect.com/science/a...

Since the lotion also includes lactic acid and urea, it would be a good idea to patch test it first and it should not be applied to abraded skin or open wounds.

One of the amino acids in the lotion, lysine, has also been found to reduce pressure ulcers when topically applied in a gel.

pubmed.ncbi.nlm.nih.gov/214...

The pressure sores on my nose from my glasses were much reduced when I started taking 500 mg lysine at night.

I would avoid glycine supplements which are sometimes sold in combination with lysine as there is some research that suggests problems with glycine in MSA patients (even though it is often touted as being neuroprotective in general).

I still have patch of eczema in my 'delicate areas' that I keep under control with Eucrisa (Rx needed).

~

Here's a recent review article on mast cells in neurodegenerative diseases:

ncbi.nlm.nih.gov/pmc/articl...

[Paul_and_Sue_Wood]

Hi, my wife has a similar problem with her skin "itching" but she describes it better as if you have plunged your busy into a very hot bath and your skin feels like it's burning.We have treated this with various types of pain killers.

paul

[butlin in reply to Paul_and_Sue_Wood]

Thank you for reply kind regards