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Multiple System Atrophy Trust

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heartbroken

laineyash profile image
18 Replies

I haven't posted on here for a while but I'm beside myself with worry, my darling Husband was rushed into hospital from his Nursing Home last night. The staff at the home went into his room and found him unresponsive, he had been ok all day, no problems, the A&E dept. found he has sepsis UTI, his blood pressure is very low and he's critical, he's been tested for covid 19 but the results are not back yet, I am here on my own at home for 12 weeks as I have cancer, nobody can go to the hospital to stay with him, I've been up all night totally distraught, I haven't been able to see him now for 4 weeks and I'm so scared I will never see him again, he's my world xx

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laineyash profile image
laineyash
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18 Replies
ChocolatePot profile image
ChocolatePot

thinking of you in this difficult time! Sending positive vibes

Tusker1953 profile image
Tusker1953

So sorry to read your post it is such a terrible situation and my heart goes out to you. Although you cannot visit your husband in hospital at least he is in good hands and will be cared for well. So many people are in similar situations where they are unable to visit their loved ones and it is heartbreaking. My love to you both. Jan

Madauntie profile image
Madauntie

Praying for a good outcome, my heart goes out to you xx

Hellebelle profile image
Hellebelle

I am so sorry to hear this. I just wondered if the staff would let you speak to him on the phone. Even if he isn't responsive he might still be able to hear your voice and it would be very comforting for him. It is a very strange time for us all and it is so distressing for people who have loved ones in hospital. Most wards have a cordless phone that can be taken to the bedside. I send you a big hug as I really feel for you. Please keep in touch. Helen xx

phamwales profile image
phamwales

We’re here with you

Kiwimagic profile image
Kiwimagic

What a worrying time for you. This Covid-19 is just adding to the sadness.

The care that he will be receiving will be the best. I hope you receive some good news today.

Make sure you are looking after yourself x sending a virtual hug

chester2107 profile image
chester2107

i’m so sorry to read this , so awful

at the moment being in hospital, i’m sure they are taking the best care they can in this situation, yes maybe the staff could let you speak to him , please look after yourself though sending love 💔

elaine x

laineyash profile image
laineyash in reply to chester2107

thank you for your reply, we have been ringing the hospital now for 2 days and nobody answers, they haven't even rung me to update me on his condition, I managed to get a Family relative who works at the hospital to speak to one of the nurses on the ward after a 25 minute wait, she told her that he has sepsis, pneumonia and has tested positive for Covid 19 so to say I am out of my mind with worry is an understatement, the hospital rang his nursing home to ask them a question about his peg feed and when they asked how he was they told them they were too busy and put the phone down, given that there are no visitors allowed you would think that the Family would be kept informed of his condition, I know they are stretched to the limit but someone so critically ill??

chester2107 profile image
chester2107 in reply to laineyash

Oh that is so awful , not being able to speak to anyone , I know they are rushed off their feet but they must have a doctor to speak to

My dad was in hospital before the lockdown , so we were lucky to see him , one person a day , unfortunately he passed away , no Covid symptoms just chest infections etc

I so feel for you , you just want to see them and speak to them

I really hope you get to speak to someone sending love and prayers

Elaine xx

laineyash profile image
laineyash in reply to chester2107

thank you Chester and I'm so sorry about your Dad xx I finally managed to get an update at 11.00pm last night, he is in a side room on a covid ward, he's on oxygen and IV antibiotics, he's being treated for pneumonia and sepsis, he has had the 1st test for covid which came back negative after being told it was positive!!! and they are awaiting the results from the 2nd test, I have to ring back at 11.00pm tonight, I need to get him out of there and back into his nursing home so he is safe but while he still needs oxygen this is not possible xx

chester2107 profile image
chester2107 in reply to laineyash

at least he hasn’t got covid that is positive , I do hope you get him out of there

sending positive vibes xxx

laineyash profile image
laineyash in reply to chester2107

thank you for your reply, we have been ringing the hospital now for 2 days and nobody answers, they haven't even rung me to update me on his condition, I managed to get a Family relative who works at the hospital to speak to one of the nurses on the ward after a 25 minute wait, she told her that he has sepsis, pneumonia and has tested positive for Covid 19 so to say I am out of my mind with worry is an understatement, the hospital rang his nursing home to ask them a question about his peg feed and when they asked how he was they told them they were too busy and put the phone down, given that there are no visitors allowed you would think that the Family would be kept informed of his condition, I know they are stretched to the limit but someone so critically ill??

We're right behind you. I know its easier said than done, but please try not to run yourself ragged with worry. You need all your strength right now.

There might be a support line at the hospital for relatives who can't visit?

Do keep reaching out for whatever support and nourishment that you know works for you, even if it just takes the edge off. It's a heck of a thing to go through alone, but somehow I know 'you got this' as they say in America!. Don't know what you will make of this, but I can recommend the Samaritans if you are sick with worry in the middle of the night. They are very soothing. 💖

Send your husband healing thoughts and to u aswell 💙

Kiwimagic profile image
Kiwimagic

That is totally unacceptable. Whilst I agree they maybe busy you should have an update daily .....

Perhaps call your husbands GP today and see if they can make contact with the staff at the hospital. Check the hospital website ours has a patient and relative email so that messages can be sent.

Sending you a virtual hug and positive thoughts, x

laineyash profile image
laineyash in reply to Kiwimagic

thank you, I finally managed to get an update at 11.00pm last night, he is in a side room on a covid ward, he's on oxygen and IV antibiotics, he's being treated for pneumonia and sepsis, he has had the 1st test for covid which came back negative and they are awaiting the results from the 2nd test, I have to ring back at 11.00pm tonight, I need to get him out of there and back into his nursing home so he is safe but while he still needs oxygen this is not possible xx

IvyRose64 profile image
IvyRose64

I have a little understanding of what you are going through and know how I felt a week ago when the same thing happened to my husband. He's fighting the virus and all signs are positive for a recovery. He was originally admitted for pneumonia and the first cover test was negative sadly the second was positive. It is a very difficult like for all of us. Remain positive if my husband can beat maybe yours will too. thoughts and best wishes to you.

laineyash profile image
laineyash in reply to IvyRose64

Thank you for your reply IvyRose, his 2nd test has come back negative, he's now being treated with IV antibiotics for a UTInad has been moved to a different ward, the hospital told me last Wednesday that he had pneumonia, sepsis and he had tested positive for Covid? I get a different tale every day when I ring, he hasn't got the virus, he hasn't got pneumonia, he hasn't been on oxygen? The sooner I get him out of there the better, I am praying your Husband gets through all this, my heart goes out to you xx

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