Hi everyone

[bluenose100]

Hi my name is derek

I cared for my wife who had msa for 7 years

Who lost her battle 2 years ago

Her first symptoms was slurring speaking

And bumping into things

And had many symptoms after that

[Yanno]

Hello Derek, welcome to this community. How are things with you in these difficult times? Having looked after your wife for so long, I’m sure you will have plenty of experience that you can use to help others.

Take care, Ian

[bluenose100 in reply to Yanno]

Thank you I’m fine now but miss my wife very much If I can help anyone I’m here

[Hellebelle]

Hello Derek,

A very warm welcome to you. Times are difficult at the moment with the restrictions due to the lockdown and forums like this are very helpful to people. You must have so much knowledge and experience you can share. I am so sorry that you lost your wife to MSA. I lost my lovely dad nearly a year ago and I miss him so much. Time is a great healer to some extent but it is still very painful at times.

I wish you well and hope that you are managing to cope OK during these difficult times.

Best wishes

Helen

[bluenose100 in reply to Hellebelle]

Thank you take care

[Paul_and_Sue_Wood]

Derek

We are all pleased you have found us and hopeful that you can pass on some of your experiences in dealing with this changing condition.

Paul

[chester2107]

Welcome I also lost my dad last March to msa , my mum was his main carer, she obviously misses him dreadfully as they were married for 61 years

It is lovely to chat to people on here what ever their circumstances

I expect you will have lots of help and advice for people

Elaine x

[bluenose100 in reply to chester2107]

Thank you msa is a horrible disease

[chester2107]

yes so awful , my dad was only started showing symptoms around 79 so he was pretty lucky to have been ok until then elaine

[bluenose100]

My wife was 59 when she had first symptoms and passed away age 66I think in the end she had enough

[Andrashko]

Hi Derek. My name is Lori and I care for my husband who was diagnosed with MSA-C late 2019, but had had symptoms 2 years prior. Thank you for joining this group, I'm sure you have lots of information thru your experience. I'm so sorry for your loss, unfortunately this is something most all of us here will, or have gone thru.

[IvyRose64]

Welcome Derek, I lost my husband just a little over three weeks ago to MSA-C. His first noticeable symptoms were about 8 years ago and his first diagnosis was with cerebellum Ataxia. After a few tests and additional symptoms he was diagnosed with MSA type C about 2016, although with what we know now we think his first symptoms were actually over 10 years ago as he had started acting out his dreams then. There is a memorable story of being on Holiday in Lake Garda, we'd gone to celebrate our Silver Wedding anniversary, on a couple of occasions he'd woke me by pulling my hair. One time after I woke him because it was partially painful and I'd screamed out, he told me he'd dreamt I was falling off a cliff and he'd reached out to grab me. I have always felt a bit of fraud by saying I cared for him because to me we just got on with it and it was more helping him out, the real care was done by the agency who come in the last 6 months. It helped us maintain our husband-wife relationship. I'm certain your knowledge and experiences will be greatly appreciated by the community as I know that at times I have found it so.

[bluenose100 in reply to IvyRose64]

So sorry to hear about your husband passingHow are you coping without you’re husband

When my wife passed I was glad she was out of pain

But it did not hit me until after funeral

Hope you keep well and safe