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Multiple System Atrophy Trust

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Getting worse suddenly

Polesden11 profile image
Polesden11
•7 Replies

Can't

Type

WALkk

Write

Feeed myself

Tthhink

Remember

Be boothhered to try any more

Medical myself

Talk

Cann

Ccrlaugh at nnothin😆g

Otttt bblleeding even for warfirrin

7hrrss in n hospital yeessteeerdaay to sstttop bleeding

Anyoneso ffeell the ssaame iiff u can uundderrsttaand

Ggoodd needs though OT s say I too well for equipment too hheelp out of bedd sso that's OK then 😀😀

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Polesden11 profile image
Polesden11
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7 Replies
•
Gill-C profile image
Gill-C

So sorry. Grim grim and grimmer! Sense of dark humour still hidden in there though 😊

Can’t think of anything to say that would make it better except that we are all walking (euphemistically speaking of course!) the road with you. Xx

Yanno profile image
Yanno

I know it's difficult but I couldn't help laughing at your post. If we didn't laugh we would all cry wouldn't we! Take care, Ian

Monkeyfeet1 profile image
Monkeyfeet1

I’m so sorry to hear this. I’ve missed you and hope your doggy is not pinching too much food!

Kaye31 profile image
Kaye31

bless you.

It’s terrible I know. My partner has just suddenly gone downhill too. He cannot walk, barely talks.

Have you checked for water infection? Probably have but just in case xxx

esj20 profile image
esj20

So sorry to hear things are a bit pants for you just now but keep up that sense of dark humor !

covidnoel profile image
covidnoel

I'm so sorry to read your post. I really appreciate you writing. Keep up your spirit. You are a light to mant of us!

ReverendBadger profile image
ReverendBadger

Totally understand Sue. Thisis a progressively disabling disease but when one degrades a bit its natural to go though a list of everything lost to date . Many of us will have long lissts like yours but with differences e.g I can feed mysef (with certain foods and messily) I can't get out of bed without equipment or assistant.

By yhr timr you have 20 dysfunctions in your body its bound to feel horrendous .but you are still here and can do some stuff. I try to get enjoyment out of something I do every dsy.

Last Wednesdy aat the hospice we ad a huge samount of laughter as I told the nurses their job was surreal and when you looked round the room at the varied characters both staff and patients it ewas like s Carry On nmovie and I assigned Barbra Windsor to play one nurse,she said she thought that was a compliment to which I replied should have gone to specsavers.

Hootf of real lqaughter all day not just my emotional lability.

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