stiffness & pain

[Bizzyissy]

This week I have noticed that I am now so stiff just not in the mornings but lingers all day, with the pain intensifying too! Today can hardly move taking paracetamol but is it time to ask for something stronger?

[LadyLins]

have you spoken to Gp or consultant. I take Gabapentin for the pain and siminet helps with the stiffness

[Amethystina]

I too have noticed this and am still waiting after seeing my Parkinson's Nurse 10 days ago for her letter to get through to my GP surgery to sanction Gabapentin for me .

[Polesden11]

Oh Bizzy, a nurse once told me that she didn't have a cupboard filled with medals for people who put up with pain and that to do so was self indulgent. I would definitely ask for more I currently take paracetamol, 2 different painkillers in my blister pack so can't tell you the names. I've a strong Fentanyl patch and take ORomorph as necessary. I've also got "real" injectable morphine in the fridge for the D/Ns to administer if necessary and I have succumbed a couple of times to that.

I'd speak to a doctor if that's possible where you live. We've enough to put up with without suffering unnecessary pain..

Hope you get sorted and feel better soon.

Sue x

[Bizzyissy in reply to Polesden11]

thank you, sometimes I think I just put up with it because I’m sure my dr is getting fed up with me! I have just had a really horrible spell of things going wrong! I sort out one thing then another comes along. Pain , stiffness & weakness is becoming more of an issue. I went to fill the kettle up the other week as we had an house full but found it so difficult to lift!

[steve028 in reply to Bizzyissy]

I can fully sympathise with you on this one. Feeling the exact same . I'm getting some ease with paracetamol or paracetamol and codene. Don't feel bad about going to your doctor. Remember, drive your own treatment as much as you can and don't accept the doctor is always right. Ask questions if you're not comfortable with what the doctors say. You're the customer.😄

[ReverendBadger]

For pain I take tramadol. If I mention to the GP i'm in pain he will ask if I'm on max tramadol dose yet. If not he tells me to take more. I may be lucky in that tramadol suits me, It works and I don't get side effects apart from haullucinations (usuallly more entertaining than TV).

The hospice are always asking me about pain when I visit them too.

Worst pain has been across the neck,shoulders, up back of head and down the back all recent due to DHS (Dropped head syndrome). 8x 50mg tramadol needed for 8 days continuous.

I have no doubt MSA will eventually give me something worse pain wise but am confident GP & hospice will have the answer.