This is not an urgent question, but is also MORE than a curiosity thing …
My mother was diagnosed with MS in the 1970s, then I was Diagnosed with the same thing in the mid 2000s, and my brother has now been diagnosed with MSA this year.. Apart from sharing two capital letters in the name, many of the symptoms are shockingly familiar.
I do not wish to seem insensitive but it seems to me that there might be some level of coincidence at play here.”Play” is the wrong word, but I hope my intention is clear.
Kindest regards,
Michael
Written by
MikeyBaby
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In the 70's MSA wasn't recognised so a sufferer could have been lumped into an MS or Parkinson's slot. Now diagnosis is better therefore your brothers MSA.
The main difference as far as I can tell is.
MS the nerves themselves are failing whereas MSA it's the brain itself.
Yes the symptoms are similar to a point.
When discussing issues with GPs and hospital doctors we have to educate them as MSA is quite rare.
hello I agree with you. We have a history of MS on my fathers side of the family. Including 2 uncles and a cousin in the 1970s onwards. Then my brother was diagnosed in his late 30s early 40s with Parkinsons and I was diagnosed with MSA in 2019. There are alot of crossovers and are awaiting the genetic testing results back to see if there is a genetic irregularity.
Interesting question Mike but sadly one I shan't be around to know the answer i.e, if there is an answer. I was always a sickly child then after being pushed from pillar to post amongst various 'ologists, for seven years , I was diagnosed with MS which had the label of 'Secondary Progressive 'and as it happens volunteered for the MS Society UK until May 2021 when I was referred to a Movement Disorder Special who dx me with MSA,
People think that MSA is just a worse form of MS but I know that with MS , it's your nerves that get attacked and that you can live your life within its constraints. With MSA it's your nerves that are dying off ( very rapidly ) in my case .
Hi Michael, I dug this up from the NHS site ...........
your genes – MS isn't directly inherited, but people who are related to someone with the condition are more likely to develop it; the chance of a sibling or child of someone with MS also developing it is estimated to be around 2 to 3 in 100
I haven't heard anything similar with MSA and according to my neurologist, MSA is not hereditary. I hope he's right for the sake of my kids.
I will respond/clarify a little. in the hope that it may be of interest ...
As Graham pointed out, Neuro-ists do NOT recognize MS as being an Hereditary condition. But ... Scientists DO now recognize that it has a CONGENITAL component. So I guess that for the sufferers;- it's a "Sticks and stones" soliloquy. I did find stats on the UK MS Soc website suggesting that for Fathers there was about a 1% (1 in 100) incidence of congeniality (!?!), whereas for Mothers it's more like 2% (1 in 50) - and therein lies the rub!
It does interest me to learn of the different responses folk have had from the medical profession(s). I used to work as a Pharmacy Technician, in the Hospital that (eventually) gave my diagnosis, so I have SOME understanding of both sides of the argument, yet somehow that is a cold comfort.
General Practitioners seem to provide a valuable level of service, here in the UK, and in my experience GPs are becoming more ready to defer treatments to secondary or even tertiary care professionals. The regulations are including Nurse and Pharmacist prescribers (there may be others - Physio). So I guess every cloud ...
An as far as Kidney disease goes, my Dad had recurrent episodes of Kidney stones, which (I think was related to his diet).
i was chatting to a lady a while ago at an msa meeting with my dad , and she was doing research into MSA and she said a lot of research came up with people having a head injury or something similar , my dad played a lot of football when he was young , with the very heavy leather footballs , so it could have been related to that , but you never know , the more research they do the better
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