What a day!

[mandg]

Well today Graham has been really unsteady with his walking. He's had trouble coordinating hand to mouth, and was choking when eating. In the car he could not sit upright was fidgety and even try to open the car door. No rhythm or reason for this. Any thoughts anyone, has anyone else had episodes like this? It's been a hard day.

[Hellebelle]

Hi Mandg, if this is a sudden change, it would be a good idea to check whether Graham has an infection such as a urinary tract infection. Infections tend to make symptoms much worse. Otherwise, I can remember my dad had some days that were worse than others.

Sending lots of love and strength to you as this is one of the most difficult conditions to manage. Thinking of you both. 💕

[Hidden]

You must be so distressed. I am sorry. Yes. My dad had this too. Trouble swallowing (dysphagia). Unsteady on his feet (now bed bound). This brings about frustration and with uncontrollable emotions associated with MSA it appeared worse. I can’t give you a solution but just to us she wants h day and trust your instincts. Seek medical help as you need. Get support around you. Chop the food up a little to help. My Dad has been told that he shouldn’t eat toast anymore. We call it Toastgate! He is still eating toast and fed at risk. His decision, with full mental capacity. I don’t like it, his dietitian doesn’t like it either. It is his choice and he loves food. There’s a balance and without joy in life, what are you left with. Toast, family and friends. Good chats and laughs. That’s the joy when health is not. I wish you the best.

[Hidden in reply to Hidden]

Ignore my typos. I blame predictive text!

[mandg in reply to Hidden]

Tell me about it. Graham has a good appetite and eats all the wrong things!! ...wont be told. Thanks for your reply

[Hidden]

An infection would be my first thought too. Kx

[TK-67]

my mum is the same - smallest infection sends her symptoms haywire! However with MSA infections can be silent - it may from exam and even urine tests that everything is fine, no temps etc. It's taken us a long time to persuade GPs that if something isn't 'right' then it's probably an infection easily solved with antibiotics.!The other thing is that MSA is so unpredictable - it could just be one of those days...for us every day is so different, we worry about something and then it's just gone! We've learnt to not panic and wait and see