Light headed

[Whelks]

Hi everybody, does anyone experience the same symptoms as I do when I stand up I feel light head Ed and dizzy my blood pressure is not low it is a bit high! It is very hard to discribe the felling to anyone.

[Paul_and_Sue_Wood]

Hi

My wife Sue is now 12 years on her journey with MSA symptoms and one of the first signs was loss of balance and feeling dizzy even when sitting still

We put this down to the inner ear balance system signal failing.

She has a tablet to help so chat with your consultant and GP.

Paul

[Helenhooter in reply to Paul_and_Sue_Wood]

Hi Paul, I did have some tablets 2 years ago for inner ear problems but unfortunately they didn't work. Maybe they'll try other drugs to help now that it's MSA? My husband said if there's no treatment and no cure what's the point of wasting time at the hospital. I think I can understand his logic but by going I may help them get some insight into the condition and they may suddenly have trials for new medication. I think he's struggling with the diagnosis much more than me?Best wishes

Helen

😊

[Helenhooter]

Hiya, I get it a lot it's like being drunk for free

[Whelks in reply to Helenhooter]

Hi,thanks for replying sorry to hear about your situation you should never give up hopeing, you never know what’s around the corner regarding new drugs and etc.I like the way you describe it ,being drunk for free😊

[Helenhooter in reply to Whelks]

😂 hopefully my sense of fun and humour will remain 😂

[Paul_and_Sue_Wood]

Hi, his sentiments are true there is no cure, BUT

to ensure the best life you can lead and to be as normal as possible then you HAVE TO TRY treatment and medications, mainly to alleviate symptoms so you can have as normal a life as possible.

The condition robs you of the life you imagined, but if you just let it take you over the deterioration will be quicker than you would like. Medication should slow things down so allowing you the life with your family and friends.

Paul

[Helenhooter in reply to Paul_and_Sue_Wood]

Thanks Paul 😊

[Juliehabib]

Hi all

My brother has MSA and was diagnosed last year . He suffered with dizziness everyday , stiff joints , bowel constipation , Loss of balance and speech and walking difficulties . He was prescribed clonazepam to sleep and this made him more dizzy the next day . He also tested positive for TG6 gluten sensitivity .

He has been off all medication for 6 months , he follows a strict gluten free diet as requested by his medical practitioners . He takes probiotics and Curcumin soluble liquid and eats mainly plant based foods .

His dizziness went away , his bowels returned to normal , his still joints returned to normal .

It is just his speech and walking now which are improving and his physio signed him off yesterday and said his improvements are not what they see . He is not following the typical MSA route . He doesn’t not fit the norm was his physios words .

He does intense physio 3 times a week including speech . He can feel his hip slightly now and he can rotate his feet and legs which he could not do at all last year . He is stronger and landing his feet better more controlled .

When he was in the meds they prescribed him he couldn’t do any of this and felt fatigued and dizzy daily .

We have done a lot of research that links this disease to the gut / vagus nerve / brain . So we have focused on healing his gut and these improvements are what we are seeing .

[chester2107 in reply to Juliehabib]

i’ve heard that pre-biotics help , with lots of different illnesses, very interesting , unfortunately my dad refused to try anything ....

[Helenhooter in reply to Juliehabib]

Julie, that sounds really positive. I'm hoping that they test me for the same thing. I'm willing to give anything a try 😊Best wishes

Helen

[Fgsm in reply to Juliehabib]

Hi Julie . My husband is in his 5th year of diagnosis which took many more years . He has all the symptoms you describe . He used to be a cranial sacraltherapist and we are all believers of the alternative therapies . Do you have any more information you could email me please . Thank you ferri

[bluenose100]

Yes my wife had problems with low blood pressure doctor gave her tablets but did not help her blood pressure When I took her toilet sometimes she passed out for maybe 30 seconds told doctor and consulted not a clue

So I gave her salt which raised her blood pressure don’t know if I done the right thing

Giving her salt.

But I was on my own with her