MSA Trust for Unites States

[Andrashko]

I have read several responses on this subject, but always for the UK. I live in Colorado in the US. Is there anyone that has a site for MSA Trust that is in the Unites States? The UK site is very helpful, but not so much for things that would require locations locally.

[Yanno]

We always hope that the information given here is relevant to everyone and yet of course often reference is made to local UK events. I’m sure everyone would welcome posts about events elsewhere in the world. Whilst the MSA Trust again has much on its web site that would be of interest; it is primarily focussed on the UK & Ireland for its support groups.

You may like to look at the equivalent organisation for the USA which is the ‘MSA Coalition’. (multiplesystematrophy.org)

Take care, Ian

[Andrashko in reply to Yanno]

Thank you Ian! I will definitely check it out

[vis1]

Hi

My brother spoke to a lovely , helpful man who is in USA. I hope this can be the start of something useful for you. Here are the contact details I have:

Lawrence Kellerman, PhD

Board Member, MSA Coalition BoD

[phone]

iPhone: [phone]

email: [e-mail]

Kind regards

Vis

[Andrashko in reply to vis1]

Thank you for this information, I will definitely look into it.

[Floosie5uk]

Facebook has a large community for MSA and most of the postings on there are from the US. Search for MSA A caregivers journey or another is Multiple System Atrophy. Good luck

[Andrashko in reply to Floosie5uk]

Yes, after your comment, I found quite a few groups. Thank you for this information