Hello dear people, may be you can help me a bit, because I became very desperate...
My name is Irina, I am 38 yo and live in the Netherlands..
Thank you very much in advance that you’re taking time to read my e-mail and may be you can help me to find the answer.
Here is my story:
Somewhere around October/November 2017 I started to feel that my left hand became more “unhandy/clumsy" and I got a degree of weakness in my arm and leg and also some pain on the back side of my left leg. I tried to ignore it but found out that I feel it more and more.
I went to my GP and she referred me to a neurologist.
A blood sample was taken and nothing serious was found. No Lyme as well ( I was bitten by tick on September 22 2017 but never had any rash).
In the middle of December 2017 I already felt some abnormal sensations in my left leg and food-it was always very very cold, I had to wear a few socks at the same time! I also got some problems with my bladder-I needed to concentrate before I could start to urinate. At the same time I had some pain in my muscles- arm, neck and back.
I visited the neurologist on December 20 2017. He did not know what the cause of my symptoms was and planned an MRI for January in order to check for MS.
Later, in the end of December 2017 I got new symptoms: myoclonus. It has started from my finger, I have a video of it and continued over all my muscles, my limbs (slightly)
At the same time I got so much anxiety that I could not sleep and eat.
Whilst in Austria during Christmas 2017 an MRI can carried out which gave no indication of MS. These results were passed back to my neurologist who said that since it was not MS that he was finished and that `I should go back to my GP.
Mid January 2018 I got a burning feeling everywhere on my skin. Since that time my skin is less sensitive to touch than before. A few times in the night I woke up because of pain on some parts of my leg's skin and after it became almost numb. I can feel something but very very subtle. Also at that time some tested carried out in Ukraine. A CT of my stomach showed enlarged and clustered lymph nodes. A subsequent PET-scan with contrast fluid did not show that the contrast was actively taken up in the lymph nodes.
In the last 2 weeks my symptoms are getting worse (more frequent and severe) and in addition I have new symptoms, sometimes on a daily basis. For example:
• I have difficulty to focussing and concentrating when I look into the distance and have more like a tunnel vision.
• When I walk I sometimes feel pain in my legs and sometimes I feel a huge weakness. I have problems to go to WC . I need to take a time to urinate and sometimes it comes nothing.
• It seems to be my automomic disfunction got lost. My bladder , like I said before and I don't sweat anymore. Also my libido became 0.
I Have got parathtesias all over my body..
When I started to google of my symptoms I was pointed to MSA. Depression, anxiety , myoclonus , abnormal sensations. I would like to ask you: What is your opinion, could it be a MCA?