I have had ET for 3 yrs and receiving hydro/anagralide/asprin treatment.
12 mths ago i started experiencing continuous pain (similar to cramp) in one leg, it then went into other leg and has since gone to my arms and shoulder, also having numbness/tingling in toes and fingers.
As pain is 8/10 - 24/7 went to rheumatologist who, after tests, has said he thinks it may be pernitious anaemia and prescribed B12 injections monthly. After searching the net on this everywhere talks about the tingling but nowhere says anything about the 24/7 pain. just wondered if anyone else had experience of this. Happy New Year to you all have a good one.