ET and Blood Pressure

[JollyGood25]

Due to great platelet results a few months ago lowered my Pegysus dose to 90 mg monthly. Over the last couple of months had niggly chest pain, slight dizziness which lead me to doing blood pressure reading, result 160/102 Panic lol, but asked advice, just monitor, no concerns. Anyway have monitored for 3 days, constantly high 90+ lower reading. Looking like my ask to lower dose not working for me, anyone else had this happen ? Doc appt next week, bit anxious but hey ho Does anyone else have high BP untreated with ET ?

[hunter5582]

It is very important to treat hypertension in the context of ET. There is elevated risk of cardiovascular issues in this situation. Consultation with a cardiologist would be advisable to ensure optimal care. There can be different underlying reasons for the hypertension. Optimal care requires a proper assessment. This is particularly important since you are reporting symptoms that suggest some kind of vascular issues occurring, It will also be important for the cardiologist and hematologist and GP to collaborate on your case.

Please do let us know how you get on.

[JollyGood25 in reply to hunter5582]

Thanks Hunter Its 150/100 at moment, scarey. Probably my own fault asking to do monthly See what tomorrow brings The Joy eh :/

[hunter5582 in reply to JollyGood25]

Like balancing a unicycle on a tightrope while juggling. Great fun!

[JollyGood25 in reply to hunter5582]

🙂

[Jennytheb]

Morning, I have 3 x 500mg Hydroxycarbomide with Jak2ET.

Have just come off the phone to pharmacist as he was unhappy with my BP results this is with taking Lisinopril pm and Amlodopine am.

I have no effects with taking either the BP medication or Hydroxy.

I think the doc visit is needed, not worth risking high BP is it?

Good luck and hope you keep well.

Hunter is an expert in all of this and seems to get better treatment living out of UK, think its US he lives but hopefully your doctor is gemmed up with our condition, if not I think would be a good idea to seek an alternative consultation.

[Solyesh]

yes....my BP is about 140/90 (the definition of hypertension)..has been for years (prior to the ET/pre-fibrotic PMF diagnosis)...for now both my MPN specialist and my GP are ok to monitor without additional medicine..I am on Peg 90 mcg bi-weekly and it has produced an apparent CHR as my counts are all WNL (recently switched to Besremi due to Peg shortage so we shall see)...I exercise 6 days a week (3 intense cardio (maintaining HR between target and max (age-adjusted) for an hour) and 3 weight training) and all other indicators are good (including glucose)...I am a little worried as my BP has been high for a while (although my GP did note that many people of African descent have naturally higher BP (bit no accepted studies as to why...) - I basically follow the Mediterranean Diet (really to reduce inflammation as much as possible) and my weight is fine (BMI in normal range although I personally hate this as a measure)....

My potassium levels have always been at the high end of normal (or slightly elevated) so that is not the issue...and the sodium (Na-sodium (B)) has always been WNL...but..I KNOW I consume too much sodium (love savory/salty - sigh) - the one time I did make a very concerted effort to eliminate as much added sodium as possible - my BP did come down slightly (but was still about 130/90)..

Both docs seem ok for now to monitor (since I am monitored so closely anyway) - but I need to try and eliminate added sodium again and see if that helps...would rather avoid adding one more med to my list but will do what I have to do...