new news

[Windy51]

hi has anyone heard of a new drug out for blood cancer I heard you take two tablets a day for 18 months and it’s gone

[AndyT]

I’ve not heard of that and to be honest it sounds a bit too good to be true!

Can you provide any more information about what the drug is called and what type(s) of blood cancer it is used to treat?

As MPNs are chronic conditions without a cure (except stem cell transplantation for a minority of MF patients) treatment is usually long-term, to reduce risks and symptoms rather than to cure the condition. We live in hope that a cure will be found one day however! 🤞

[Windy51 in reply to AndyT]

no sorry I don’t know I thought maybe someone on here had heard anything

[Windy51 in reply to AndyT]

Yes we do I’m praying it’s true I was hoping someone else would have heard something about it

[Loubprv Volunteer]

Hmmm. I think perhaps you might be thinking of Ruxolitinib ( Jakavi) which I take.

2 tablets a day. For life as far as I know. Certainly not a cure but an excellent drug. I have PV by the way. I’ve no idea if it’s licensed in Australia. It’s quite expensive and I consider myself extremely fortunate to be taking it.

Louise

[Windy51 in reply to Loubprv]

Ok is this one good do you have side affects

[Loubprv Volunteer in reply to Windy51]

Hi Windy

All drugs MAY have side effects .

Well you certainly have an appropriate name because the only side effect is copious amounts of wind 🤣 so far touch wood this drug is super.

Suggest you ask your haematologist re treatment and side effects.

Everyone is different and reacts differently to medication. Interferon suits thousands I couldn’t get on with it.

Oh - and don t read the info until you experience what you think might be side effects. Mind over matter and all that.

But these are questions for your haematologists.

Louise

[ainslie]

would love to hear more about that 😃

[Windy51 in reply to ainslie]

Me too

[Mazcd Partner MPNVoice]

hi windy51, do you have any more details about this, particularly the name of the drug? Thank you, Maz

[Windy51 in reply to Mazcd]

No sorry I would have mentioned it I thought maybe someone on here might know

[Hidden]

Sounds too good to be true, but think we would all even find the funds to pay towards that. Havent seen anything like this Windy51

[Windy51 in reply to Hidden]

The person who mentioned it said it was not expensive I am still trying to find out more

[Windy51 in reply to Hidden]

I just heard last week but the man did not know the name he heard from somewhere

[Lasbrisas1]

WAS THERE A REASON WHY YOU OMMITTED TO TELL US ALL THE NAME OF THIS DRUG.

[Windy51 in reply to Lasbrisas1]

I don’t know the name I was hoping someone on here may have heard something too

[Windy51 in reply to Lasbrisas1]

Why all Capitals there is no reason for me to not tell everyone if I knew the name I would tell the WORLD

[Stripecat]

I was on this drug for a few years before changing to jakavi definitely not a cure for blood cancer , in my case anyway.