3 week review/update

[lizzziep]

I’ve been on Momelotinib for 3 weeks now and have been for a review

My haemoglobin has gone from 76 to 81, not a massive rise

However my platelets have jumped from 279 to 529

The doctor said he expected my platelets to go up

My white blood count has gone from 5.9 to 7.2

Blasts from zero to 0.1

My other counts are within normal levels except for

Haematocrit 0.25

RDW 20.2

Nucleated RBC 1/100

Urea 7.9

Creatine 9.2

These are very similar to last month’s figures

The doctor says 3 weeks is a bit soon to tell how the new drug is going to affect my counts, so he wants me to go back in 5 weeks, unless I feel unwell or anything before then.

I haven’t had any bad side effects - so far!

[Lyndjs]

So good to hear you've had no side effects 🥰 I hope your platelets reduce and your next bloods go well.

Thanks for the update x

[hunter5582]

It sounds like you are on a predictable path with initiating momelotinib. You are on-target that is is too soon to tell how you are going to ultimately respond. I would not worry about the platelets at that level. There is no evidence that there is any benefit to keeping platelets below 400 has a particular benefit for most people with MPNs.

Wishng you success moving forward.

[lizzziep in reply to hunter5582]

Thank you.

[ainslie]

I don’t know much about Mom but that seems a good start , it’s also good you are tolerating it well 👍

[lizzziep in reply to ainslie]

Thank you

[katiewalsh]

How great you haven’t had any bad side effects! Thanks for letting us know how you’re doing. We’ll have to see what happens with your next labs. Hang in there! Katie

[lizzziep in reply to katiewalsh]

Thank you

[MCW22]

Keep us updated. Best wishes. Carol.

[lizzziep in reply to MCW22]

Thank you

[Bullace]

Thanks for keeping us informed. I am so glad no bad side effects. All good wishes Hilary

[lizzziep in reply to Bullace]

Thank you