I have ET, jak 2 negative, and am on HU and aspirin.
Has anybody else had low red blood counts, mine have been a bit low for over a year, not massively so, they have gone from 3.42 to 3.03.
The specialist nurse also said the haemoglobin is sometimes low as well. I go back in a couple of weeks, and she said if the counts hadn't gone up they would have to investigate why I was anaemic. I haven't had any bleeding from anywhere.
I wondered if it was the HU that caused it, I take 2 x 500 mg for 5 days and 3 x 500 mg for 2 days. I have lost 2 stone over the last 6 months (slimming world). That has been hard work, it hasn't exactly dropped off, but I wondered if the weight loss affected the dosage?
Any ideas anybody?